My sister went to the hospital with paralysis ect and they have told her she has malburg. Ms. She has been in intensive care. For three weeks. It is we have found out a very rare form of ms we have done just a little bit of internet research. She has the blindness quadrapadlegic her lungs are working and she can speak a little. Is . She went to bed one night fine and woke up the next morning like this the only symptoms she had was after a jaw surgery in November her tongue felt numb in the middle and a bit of tingling in her one pinky finger the doctor told her it was probably nerve damage from surgery, this ms diagnosis seems like a death sentence at this point. Is there any advice. U could give us at this point
I am sorry about the situation with your sister. Mar burgs variant of MS is one of the worst possible forms, unfortunately. Regarding treatment corticosteroids are the most used treatment, but at times other measures like plasmapheresis or immune suppressors such as mithoxantrone have been tried. However, I have to say that their efficacy is limited in this form of MS and there are not any other proven options. I hope things work out for the best.