Hi, Our Son, now 33 years of age was diagnosed with Neurofibromatosis type NF2, when he was 16.Since then has had several spine, and acoustic surgeries to remove these tumors.Also underwent Medicinal Trial at NYU with Lapatanib, Avastin, and Affinator, alongwith 15 other candidates but did not help. He had Spine Surgeries in April ( T6-T7 ), and October ( T9-T-10), December (Gall Bladder removed ), January 2014 (ERCP to remove stricture in CBD), February 2014 Debaulking of Acoustic Tumor in the left side of Brain/ear, Cymetra injection in his vocal cord in April, 14.Has Swallowing problem now, and has been having severe abdominal pain since 4 years.April he had blood test and Capsule Endoscopy done and results were normal, but has soft tissue on his duodenum. Please advise
Hello, I passed carefully through your question and would explain that the swallowing problem and the abdominal pain could be related to autonomic nerve dysfunction.  Anyway, I would recommend performing a new brain MRI in order to exclude a brain tumor which could be responsible for the difficulty in swallowing.  Regarding the abdominal pain, there is not too much to be done, besides diet modifications and antispastic Chat Doctor.  Hope I have answered your query. Let me know if I can assist you further. 