Les registres médicaux et la confidentialité
Medical registries are databases which record aIl cases of a specifie disease found in a given area. Registries provide vital information for public health research and for the implementation of appropriate public policies. The question is : How does the regulation of privacy apply to registries? Legislation currently in force in the province of Quebec requires the consent of a patient in order to inc1ude personal information in the registry. Personal health data in a registry have to be protected to preserve the privacy of research subjects. To ensure data security and confidentiality sorne measures must be taken during their conservation. Secondary use of data is possible under certain conditions aimed at protecting the right to privacy. It is possible to use such personal information again for other purposes even if the data need to be transferred to another national or foreign database.
Registry Personal data Privacy Consent Confidentiality