<story><title>I’ve been battling cancer last 2 years, but now only have a few days left</title><url>https://twitter.com/stokesneuro/status/1604369158883491841</url></story><parent_chain><item><author>burritas</author><text>I&amp;#x27;d rather not go into personal detail but I share a similar experience. The thing that really drove it home for me was when I got back home and was telling my own doctor about my experience dealing with family in the medical system and she said I was mistaken or there was a misunderstanding because that kind of thing doesn&amp;#x27;t happen. I asked why she was siding with a doctor she&amp;#x27;d never met before instead of listening to her patient, which got her pretty flustered. I don&amp;#x27;t see her anymore.</text></item><item><author>bane</author><text>Almost exactly 18 months ago, my then 87 year old father, after feeling unwell and having some fluid problems with his lungs was diagnosed with stage-4 lung cancer. He turned down treatment and died at home a couple days before Christmas last year.&lt;p&gt;I&amp;#x27;ve come away from the experience very unhappy with the medical system. There&amp;#x27;s a long list, things that in any other industry would be prosecuted. The medical and hospice systems are as near to worthless as any amount of money can buy -- at most times an absolute farce.&lt;p&gt;These &lt;i&gt;were&lt;/i&gt; people who went out of their way to make things a little less worse, but they all worked on the periphery of the system: drivers, suppliers, and so on.&lt;p&gt;Fuck cancer, but also fuck the American medical system, and anybody who&amp;#x27;s gotten in the way of making it more sane and compassionate.&lt;p&gt;I miss my Dad.</text></item></parent_chain><comment><author>the_sleaze_</author><text>My own father passed roughly a year ago as well, also at a particularly advanced age. I had a similar experience, where I became frustrated with the lack of what I perceived to be care. As in &amp;quot;give a shit&amp;quot;, or even a desire to find an actual diagnosis. One doctor told me, as my father lay intubated a foot away, that [the Dr&amp;#x27;s] best gift he gave his own parents was to DNR them so they never spent a day in a nursing home.&lt;p&gt;A year later I&amp;#x27;ve realized that my father was 80 years old. We all have to die at some point. Your father was 87. I understand you&amp;#x27;re upset. It may be that there was more for the medical system to do, there may not have been.&lt;p&gt;At what point does spending possibly millions of dollars to extend some one&amp;#x27;s life 1 year, 2 years stop becoming good and turns into actual harm?&lt;p&gt;They have to go at some point. Even if it is someone else&amp;#x27;s fault.</text></comment>
<story><title>I’ve been battling cancer last 2 years, but now only have a few days left</title><url>https://twitter.com/stokesneuro/status/1604369158883491841</url></story><parent_chain><item><author>burritas</author><text>I&amp;#x27;d rather not go into personal detail but I share a similar experience. The thing that really drove it home for me was when I got back home and was telling my own doctor about my experience dealing with family in the medical system and she said I was mistaken or there was a misunderstanding because that kind of thing doesn&amp;#x27;t happen. I asked why she was siding with a doctor she&amp;#x27;d never met before instead of listening to her patient, which got her pretty flustered. I don&amp;#x27;t see her anymore.</text></item><item><author>bane</author><text>Almost exactly 18 months ago, my then 87 year old father, after feeling unwell and having some fluid problems with his lungs was diagnosed with stage-4 lung cancer. He turned down treatment and died at home a couple days before Christmas last year.&lt;p&gt;I&amp;#x27;ve come away from the experience very unhappy with the medical system. There&amp;#x27;s a long list, things that in any other industry would be prosecuted. The medical and hospice systems are as near to worthless as any amount of money can buy -- at most times an absolute farce.&lt;p&gt;These &lt;i&gt;were&lt;/i&gt; people who went out of their way to make things a little less worse, but they all worked on the periphery of the system: drivers, suppliers, and so on.&lt;p&gt;Fuck cancer, but also fuck the American medical system, and anybody who&amp;#x27;s gotten in the way of making it more sane and compassionate.&lt;p&gt;I miss my Dad.</text></item></parent_chain><comment><author>inamberclad</author><text>It&amp;#x27;s a common theme - doctors just don&amp;#x27;t listen to their patients at all.</text></comment>