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The UK Infantile Spasms Trust (UKIST)

The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare seizure disorder infantile spasms, also known as West syndrome. The charity offers a lifeline to anxious parents via its online community, and works alongside medical professionals to raise awareness of this little known condition, which can be very difficult to recognise – but potentially very damaging if left untreated.

INFORMATION & GUIDANCE

Infantile spasms occurs in very young children, usually under the age of one, and causes babies to have seizures that can look very similar to colic and reflux. However, a baby with infantile spasms is in fact experiencing a chaotic brainwave pattern that can lead to loss of skills and brain damage, so early479 social leaders killed in Colombia since Peace was signed

Colombian Ombudsman, Carlos Alfonso Negret, confirmed that, according to the records, between January 2016 and April of this year, 479 social leaders have been murdered throughout the country and 982 received threats between April 2018 and April 2019.

ANF

BOGOTA

Friday, 28 Jun 2019, 07:42

According to Negret, following the denunciations made by the Human Rights defenders and social leaders, what the State must do is to seek an articulation with all the entities so that these people "can do their work in the regions, cities, town without fear."

Likewise, Negret stressed that it is necessary that in the regions of Cauca Antioquia, Meta and Guaviare there be greater institutional presence.

Finally, he explained that the situation in the areas with the highest rates of