(which is very frustrating). We opted for a device that could be mounted on to her wheelchair, so it will be able to always be available to her for communication:

This is the Eye Gaze Device mounted to her wheelchair

I have a few videos of her using the Eye Gaze Device at home. In the first video, she is playing a game where she has to throw snowballs at characters as they appear. In the second video, she has played a game where she has to make a spooky cake, and put creepy toppings on it. The video shows her re-telling what toppings she had put on the cake. This is a major part of being able to communicate - re-telling a story of something that has happened, sofor 20 hours out of every 24, is a long time. That's a lot of entertainment to provide. That's a lot of Peppa Pig and Disney's "Frozen".

But we survived!

The first week, we went to stay with the girls' grandparents in Devon, where we had some fun days out:

The next three weeks, we had a carer, Sam, working with us, whom I've mentioned before on this blog here as she has raised a lot of money for Rett UK.

On the second week of the holidays, Sam and Jess went together to attend a week-long workshop run by the Chickenshed Theatre Company. Chickenshed is an inclusive theatre group, who in the holidays run workshops for children. There were 85 children on the workshop, of which several had special needs or