"...all five children are covered under the Affordable Care Act (Obamacare)."

This is a somewhat confusing statement. The ACA includes private health insurance plans such as the one purchased by the mother. Did she include her children on her plan, or are they covered by the Oregon Health Plan? If they are on their mother's plan, which was apparently purchased on the health insurance exchange, then it looks like someone dropped the ball. There is a plan available on the exchange that has an out of state network. I'd be quite surprised if there wasn't a surgeon available in the network with experience correcting this condition. 

For what it's worth, the Silver plan that has the out of state network is from Providence. 

I wish them luck both raising the funds they now need and with the procedures this child will go through.