A friend's son had this condition. Part of the well-baby examination that should take place at birth, and then be repeated several times during the first few months of life, is supposed to include checking to make sure the skull has not fused. While it is frightening for a new parent to watch a physician probe their child's soft head, it is done to diagnose this condition at the earliest possible moment. 

A prompt diagnosis makes the treatment simple and nearly complication-free. Sadly, whatever pediatrician this couple used failed them and their child. In other states, this is malpractice. In Oregon, our level of medical care is so low that missing this standard check might not be below our expected standard of care.

While my friend's pediatrician also failed him, at least his condition was successfully dealt with. It involved placing hardware in the skull that allowed it to be slowly expanded, to prevent what happened to this child. Again, our level of care here is quite low.