text: Sunday August 7, 2016 09:39 PM 
   
   A neighbor describes Facebook exchanges with Megan Short, in which she hinted at abuse, her plan to move out the day of the murder-suicide. 
   
   Counseling was made available Sunday and will be again Monday, Aug. 8, at the school where the Shorts' eldest daughter Liana would have been a third-grader this school year. Wilson School District Superintendent Curtis Baker, in a robo call message, asked district parents to include the Short family in their prayers, saying the tragic event has shaken the Wilson family. He said counselors were made available from 2 to 4 p.m. Sunday. They also will be available today starting at 9 a.m. at Green Valley Elementary School, 270 Green Valley Road, Sinking Spring, for parents or their children who feel they would benefit from speaking to a counselor or caring adult. 
   
   Sinking Spring, PA — 
   
   Megan Short reportedly made no secret of the fact that she planned to leave her husband. 
   
   About a week ago, Short posted on Facebook that she needed a few people to help her move from her Brookfield Manor home Aug. 6, according to Angie Burke, who resides on the same Sinking Spring street as Short. 
   
   Burke said she met Short through neighborhood events such as the annual Christmas ornament exchange or Halloween parties, and they kept in contact, mostly through Facebook. 
   
   Burke wasn't able to help with the move because she was planning to host a birthday party for her husband and had family coming in from out of town. 
   
   On the way back from the bakery with the birthday cake, Burke saw emergency vehicles in front of the Short home, and her heart sank. 
   
   "I drove past the house about 4:15 in the afternoon, and I saw firefighters and police activity at her house and I just got sick," she said Sunday morning. "I walked down there to see if anybody had any news. Then I came back here and tried to put on my happy face." 
   
   The bodies of Megan Short, 33; her husband, Mark Short, 40; and their children Liana, 8, Mark, 5, and Willow, 2, were found by borough and Spring Township police in the home in the first block of Winding Brook Drive, according to investigators with the Berks County district attorney's office. 
   
   All died of gunshots in what investigators said appears to have been a murder-suicide. 
   
   Investigators said a gun was found near one of the adults, but they did not specify which one. 
   
   Police also found a handwritten note. They did not reveal its contents but described it as a "murder/suicide" note. 
   
   Police learned from a family member that Megan Short missed a lunch date and could not be contacted on her home or cellphone, Chief County Detective Michael J. Gombar said Sunday. 
   
   The family member contacted police, who later revealed that Megan and Mark Short had had "domestic issues," investigators said. 
   
   No one at the residence answered when police arrived for a welfare check, so officers broke into the home and found the five bodies, as well as the body of a dog that had been shot to death. 
   
   Berks County Deputy Coroner Joel Bonilla pronounced the Shorts dead shortly after 6 p.m. An autopsy for Mark Short is scheduled for this afternoon. No autopsies are planned for Megan Short or the children, Assistant Chief Deputy Coroner Michael Fizz said. 
   
   The scene Sunday morning in the quiet development of large homes off Reedy Road on the edge of the borough was far different from Saturday afternoon after the bodies were discovered. Nearly a dozen marked and unmarked police and coroner vehicles filled parts of Winding Brook Drive and part of Brook Hollow Drive on Saturday. 
   
   On Sunday, motorists and bicyclists crept through the block, scanning the two-story home and staring at the news crews assembled across the street from it. 
   
   Neighbors express sadness 
   
   Neighbors close to the Short home declined to comment Sunday morning, other than to express horror and sadness over the tragedy. 
   
   Sophie Zientek, 18, of Wernersville drove by the home after learning about the murder of a young girl she knew to be quiet but joyful. 
   
   "I knew the little girl, Liana, through Wilson (School District) cheerleading camp," said Zientek, a recent Wilson graduate. "She was a beautiful, sweet girl." 
   
   Zientek said she didn't know Liana well but still felt the need to pay her respects. 
   
   Burke said she had a sense that Megan Short was unhappy in her relationship. Megan Short attended most social functions without her husband, but Burke figured that perhaps he was uncomfortable at social functions. 
   
   "I can't say I spoke much to Mark, maybe waved," she said. "He would pull the kids in a wagon, and you would never know. But that's the thing, you don't know." 
   
   She planned to leave 
   
   On July 23, Megan Short commented on a link to an online article by Leigh Stein titled, "He didn't hit me. It was still abuse," that Burke posted on her Facebook page. The author, who has a forthcoming memoir, described the degradation, fear and humiliation she suffered at the hands of an ex-boyfriend who used manipulation and isolation to keep her a virtual prisoner. 
   
   Burke's Facebook account shows that Megan Short commented, "It really does a number on your mental health for sure." 
   
   Short commented later, "This is why I am leaving my marriage Angie. 16 years." 
   
   Burke provided screen grabs that showed another part of the July 23 conversation: 
   
   Angie Burke: "Oh Megan (includes middle and last name) I didn't know you were leaving but suspected something was up! I'm so very sorry and please call me if you need somebody to lean on! I can help you out with whatever you need! Big hugs sweetie!!! You are strong and I commend you for taking this big step!!!" 
   
   Megan Short: "Thank you. I found a rental today. Hoping I get approved. Hard being a stay at home mom." 
   
   Angie Burke: "Are you staying in the area?" 
   
   Megan Short: "No. Yardley, hopefully." 
   
   Angie Burke: "Well I do hope you get it and everything works out." 
   
   Burke said she was in a past long-term emotionally abusive relationship when she was in her teens to early 20s and finally found the courage to leave after someone shared a flier describing the cycle of abuse in domestic violence. 
   
   "I wasn't that close with her (Megan Short), but I knew her probably from Facebook as much as anything else," she said. "I knew she was an eloquent writer and a big advocate for organ donation - she was very outspoken that way. So I followed her on Facebook, and that was, you know, predominantly our relationship, so when she commented on this article I posted it really struck a chord for me." 
   
   Illness spurred action 
   
   Megan Short was active in raising awareness for congenital heart disease, regularly promoting it on her Facebook page. 
   
   Willow's story was shared in local and national news. 
   
   Megan wrote for Phillyheart.com, a website associated with the nonprofit Mended Hearts Inc., that shares the stories of families battling congenital heart defects. 
   
   She once described having to deal with the post-traumatic stress of having her daughter undergo a heart transplant after only six days of life. 
   
   The family was featured in an October 2014 story in the Reading Eagle. Willow, then 5 months old, had undergone a heart transplant at 1 week old, and her condition had been improving. 
   
   The page Willow's Heart Journey tracked Willow's progress after the transplant. The most recent post - May 27 - celebrated that Willow received a zero rejection grade for her heart transplant. 
   
   The profile picture shows Willow dressed in a Minnie Mouse dress and ears, and a Minnie Mouse cake for her second birthday. 
   
   'Luckiest guy in the world' 
   
   On Facebook, Mark and Megan shared dozens of photos of their children with friends and family. Mark's cover photo is a side-by-side with his wife. 
   
   "She's still the most beautiful girl that I've ever met," Mark wrote in a comment on the picture. "I'm the luckiest guy in the world to have her as my wife and the mother of my three amazing children!" 
   
   Many of the posts on Willow's Heart Journey appear to be written by Megan, and while the page was meant to inspire hope, it also captured Willow's hardship. 
   
   Posts tracked days in the hospital, the fear of a parent whose child is sick and the daily burden on the family's shoulders. 
   
   The New York Times published a feature story on the family in July 2015. It detailed the family's struggles with specialty pharmacies and obtaining anti-rejection medication for Willow. 
   
   Burke, who is also a stay-at-home mom, would wave or chat with Megan Short as they walked their children to the nearby playground for the summer playground program. 
   
   "A lot of kids in this neighborhood have grown up together," she said. "They may not have been close friends, but they saw her (Megan Short and her children). It's another thing: How do you explain this to a child?" 
   
   The Shorts were parishioners at St. Ignatius Loyola Parish, the church's pastor, the Rev. Thomas Bortz said during Masses on Sunday, asking prayers "for the holy repose of their souls." 
   
   Contact Steven Henshaw: 610-371-5024 or shenshaw@readingeagle.com. ||||| SINKING SPRING, Pa. — As the end of each month nears, Megan Short frets. Her 1-year-old daughter, Willow, cannot afford to miss even a single dose of a drug she takes daily to prevent her body from rejecting her transplanted heart. 
   
   Because of stringent rules from her drug plan and the pharmacy she is required to use, Ms. Short cannot order a refill until her monthly supply is three-quarters gone. Yet processing a refill takes about seven days, making it touch and go whether the new shipment will arrive before the old one runs out. 
   
   “You just feel like every month, you’re hoping that they don’t mess it up,” said Ms. Short, who lives in this town about 70 miles northwest of Philadelphia. 
   
   Ms. Short is not dealing with her corner drugstore but with a so-called specialty pharmacy, a new breed of drug dispensary that has arisen to handle the exploding number of medicines that cost tens or hundreds of thousands of dollars a year and are used to treat complex or rare diseases like cancer, rheumatoid arthritis, hemophilia and H.I.V. 
   
   Photo 
   
   Such specialty medications, as they are called, now account for one-third of all spending on drugs in the United States, up from 19 percent in 2004 and heading toward 50 percent in the next 10 years, according to IMS Health, which tracks prescriptions. 
   
   The trend has led to a corresponding boom in the specialty pharmacy business, which by one estimate grew to $78 billion in sales last year from $20 billion in 2005. Insurers, pharmacy benefit managers, hospitals, retail drugstores — even supermarkets — are scrambling to start or acquire specialty pharmacies or to expand the ones they have. 
   
   And the pharmacies have an alluring pitch: They promise to help save health plans money by teaching patients how to inject their medicines when necessary, helping them deal with side effects and ensuring the drugs are not wasted. Some studies, usually paid for by the pharmacies themselves, show that patients served by specialty pharmacies are more likely to keep taking their medicines and have better health outcomes than those dealing with a retail pharmacy. 
   
   “We generally find that people have high satisfaction rates with any specialty pharmacy, and a lot of that is because they’re getting very hands-on, personalized care,” said Dr. Alan M. Lotvin, an executive vice president at CVS Health, whose specialty pharmacy Ms. Short uses. 
   
   But as specialty pharmacies proliferate, questions are emerging about their role and business practices. 
   
   Interviews with patients, patient advocates and doctors suggest that specialty pharmacies do not always live up to their billing. There can be onerous refill policies that require hours on the phone, shipments that are delayed or error-ridden, and difficulty reaching a pharmacist or other representatives. 
   
   Moreover, many patients are limited to one specialty pharmacy — often one owned by their insurer or pharmacy benefit manager and requiring delivery of drugs by mail. That leaves patients without options if they are dissatisfied. 
   
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   Consumer Watchdog, a consumer advocate group, has sued four insurance companies over their policies of restricting the pharmacies that patients can use to obtain drugs for H.I.V. Three of the companies — Anthem Blue Cross of California, UnitedHealthcare and Aetna — have since changed their policies to provide more options for H.I.V. patients. The most recent of the lawsuits, against Cigna, was filed in April. 
   
   There are also questions of potential conflicts of interest, since many of the bigger specialty pharmacies are owned by insurers or pharmacy benefit managers like CVS and Express Scripts. Pharmacy benefit managers, or P.B.M.s, are supposed to help health plans control drug costs. But will they have the zeal to do that if they are making money dispensing these expensive medicines? 
   
   “Forcing people to use a P.B.M.’s own specialty pharmacy creates a situation where the fox is guarding the henhouse,” said David Balto, an antitrust lawyer in Washington. He represents independent specialty pharmacies, some of which claim that insurers and pharmacy benefit managers funnel business to their own pharmacies, even if others may provide better service. 
   
   Yet another issue is that some drug companies are choosing only a few specialty pharmacies to handle their products. That could give pharmacies an incentive to position themselves as allies of the manufacturer more than of the patient or health plan. 
   
   Federal prosecutors are seeking as much as $3.3 billion in a whistle-blower lawsuit against the drug maker Novartis, saying it provided financial incentives to specialty pharmacies to keep patients on two of its drugs, or to switch them to a Novartis drug. The prosecutors say that nurses hired by the specialty pharmacies to call patients read scripts that neglected to mention certain serious side effects of one of the drugs, Exjade, which is used to treat iron overload in the blood. 
   
   Accredo, the specialty pharmacy owned by Express Scripts, agreed in April to pay $60 million to settle civil fraud charges in this matter. BioScrip, a smaller specialty pharmacy, settled previously for $15 million. Novartis disputes the charges, saying incentives were to help the pharmacies do a better job in patient care, one aspect of which is to help patients stay on their medicines. It says that doctors, not the pharmacies, decide which drugs patients should get and how long they should take them. 
   
   Diplomat Pharmacy provides a glimpse into the explosive growth and financial workings of the industry because, unlike many specialty pharmacies, it is publicly traded and not part of a bigger company. Started as a single drugstore in Flint, Mich., in 1975, Diplomat now is a nationwide business with $2.2 billion in revenue last year and a stock price that has nearly quadrupled since its initial public offering in October. 
   
   The average prescription Diplomat fills cost nearly $2,800 in 2014, up from about $1,300 in 2011, in part because of drug price inflation. Of the $2,800, it kept $167, the difference between what it paid for the drug and what it sold it for. That is about 10 times the gross profit of a retail pharmacy, according to Adam J. Fein, of Pembroke Consulting, an expert on drug distribution. 
   
   Advertisement Continue reading the main story 
   
   Advertisement Continue reading the main story 
   
   However, most of that money was absorbed by the cost of services, like nurses, that Diplomat provided. In the end, its overall profit margin was not that much different from that of a retail pharmacy, Mr. Fein said. 
   
   Executives at the specialty pharmacies say their surveys show more than 90 percent customer satisfaction. They say their pharmacists and nurses, who specialize in particular diseases, are more knowledgeable about those conditions than general pharmacists and nurses. 
   
   Advertisement Continue reading the main story 
   
   They say the health plans often require patients to use a single specialty pharmacy to keep costs down, just as health plans are limiting the choice of doctors, hospitals and drugs. They also say it is often the health plans that restrict early refills, so that the expensive drugs are not wasted. 
   
   Photo 
   
   “You don’t want people to be stockpiling drugs in their house,” said Dr. Lotvin of CVS. But he added, “None of us want people to get down to their last dose.” 
   
   Still, executives concede there is room for improvement. Many specialty pharmacies are going through a voluntary accreditation process to demonstrate that they meet certain standards for patient care, such as providing 24/7 customer service. 
   
   Dr. Lotvin said CVS was working to allow nearly everyone to renew prescriptions online. CVS also has started to allow customers to pick up their specialty drugs at a nearby CVS retail pharmacy rather than have them delivered by mail. Some patients prefer that because they do not want to wait at home for delivery and do not want a package worth thousands of dollars left on their porch if they are away. CVS has found that offering a choice made patients more likely to keep taking their medicine compared with mail delivery only. 
   
   Mariah Leach of Louisville, Colo., said she would have preferred to pick up Enbrel, the drug for her rheumatoid arthritis, at her grocery store pharmacy, along with all her other prescriptions. But her insurer required her to get that one drug by mail from a specialty pharmacy. She said she did not need the hand-holding provided by specialty pharmacies. “I feel that’s really more my rheumatologist’s job,” she said. 
   
   Ms. Leach recently switched to a drug that does not require her to deal with a specialty pharmacy. But when she did, she said, she was constantly frustrated by the inability to reach people on the phone or by errors in shipments or billing. 
   
   “Too bad my insurance forces me to get my Enbrel though this particular pharmacy, otherwise I’d have ditched this place after strike two,” she wrote in a blog post in October 2013. “By my count, we are on about strike six, but I have no choice but to stick with them.” 
   
   Some customers, however, praise the service they receive. Susan Day, a fourth-grade teacher in Williamsport, Md., has been using Accredo for more than 15 years for her son, John, who has pulmonary arterial hypertension and needs a drug pumped into his lungs. 
   
   Accredo sent a nurse to the Days’ home to teach Ms. Day and her husband the complicated process of mixing her son’s medication and putting it into the pump. It also helped set up a plan with John’s school when he entered kindergarten. 
   
   “This is life-sustaining medication,” said Ms. Day, who spoke to a reporter at the request of Express Scripts. “I want someone who knows this medication inside and out.” 
   
   Ms. Short, meanwhile, continues to struggle with CVS Health. Last month, after she filled syringes of Willow’s medication, Ms. Short discovered that the pharmacy had mistakenly sent enough for only 14 days, not 30. CVS mailed some overnight, but the experience left Ms. Short rattled. 
   
   “Every single month it seems like it’s something,” she said. ||||| Mark Short with his wife, Megan, and their children, Liana, Mark and Willow. 
   
   Five family members, including a 2-year-old toddler, were found dead in their home in a small Pennsylvania town in what authorities are describing as an apparent murder-suicide. 
   
   Authorities discovered the bodies Saturday afternoon in the family's home in the Berks County town of Sinking Spring, about 70 miles north of Philadelphia, according to the Berks County District Attorney's Office. 
   
   The victims, who all died of gunshot wounds, were identified by the District Attorney's Office Sunday as Mark Short, 40, his wife, Megan, 33, and their children Lianna, 8, Mark Jr., 5, and Willow, 2. Officials say the family dog was also shot and killed. 
   
   According to officials, police discovered a handgun near one of the deceased adults. A handwritten "murder-suicide" note was also found in the home. Officials also say their investigation revealed there had been "domestic issues" between Megan and Mark Short. 
   
   Police did not release any information on who fired the shots. 
   
   Police say they went to the home to check on the welfare of the family after receiving a call from a relative concerned that Megan Short had not shown up for a lunch date. 
   
   On Dec. 20, Mark Short posted a picture of the couple on his Facebook page. 
   
   "She's still the most beautiful girl that I've ever met," he wrote. "I'm the luckiest guy in the world to have her as my wife and the mother of my three amazing children." 
   
   But neighbors told a different story. 
   
   The Reading Eagle reported that neighbors said the couple was having marital trouble and Megan Short planned to leave her husband and move to Yardley. 
   
   She and a neighbor, Angie Burke, exchanged comments on Facebook on a July 15 Washington Post opinion piece about emotional abuse in a marriage. 
   
   "Burke's Facebook account shows that Megan Short commented, 'It really does a number on your mental health for sure,' " the newspaper reported 
   
   "Short commented later, 'This is why I am leaving my marriage Angie. 16 years.' " 
   
   According to a 2015 report by the New York Times, Willow had a heart transplant when she was just a week old. The family struggled to get the drugs necessary to keep her from rejecting the new heart. 
   
   One month, Megan Short discovered that her pharmacy had mistakenly sent only enough medication for Willow for just 14 days, not the 30 she was supposed to receive, leaving the mother rattled. 
   
   "Every single month it seems like it's something," she told the Times. 
   
   In a "Philly at Heart" blog post in April, Megan Short wrote about her experience dealing with post traumatic stress disorder throughout her ordeal with Willow. 
   
   She wrote that she suffered from "anxiety and nightmares" triggered by smells, hallways or even the beeping sound of a phone. 
   
   On the website, which is devoted to families dealing with congenital heart issues, she also wrote that she experienced "survivor's guilt" when children with similar problems from other families passed away. 
   
   "I don't think PTSD ever truly goes away but, with therapy, medication, and the right support, I have begun to loosen its grip on me," she wrote. "As I work on my own mental healing, I wanted to share my experience so that other heart parents know they are not alone." 
   
   Staff writer Mari A. Schaefer contrubited to this article, which also contains information from the Associated Press. ||||| In the wake of a family's murder-suicide that claimed the lives of three children, people are wondering what could've led to such a tragedy. NBC10's Drew Smith talked with a social worker about the pressures the family may have faced that led to the deaths. (Published Monday, Aug. 8, 2016) 
   
   UPDATE: Relatives of Mark Short spoke with NBC10, giving some insight into the couple's relationship. Read that story here. 
   
   A family of five, including three small children, was found dead in their Berks County, Pennsylvania, home on Saturday along with what authorities described as a handwritten "murder-suicide note." 
   
   Police in Sinking Spring, just outside Reading, responded to the family's home on Winding Brook Drive at about 2 p.m. Saturday after a concerned relative asked them to make a welfare check on the family, according to the Berks County District Attorney's Office. 
   
   Inside the home, police found 40-year-old Mark Jason Short Sr., his wife, Megan L. Short, 33, and the couple's three children, 8-year-old Liana, 5-year-old Mark Jr. and 2-year-old Willow, all dead of gunshot wounds. A dog was also found dead. Authorities said Megan Short was supposed to meet a relative for lunch Saturday, but never showed up and never answered her phone. 
   
   A neighbor who did not want to be named confirmed that this photo, posted on Mark Short's Facebook page, shows Megan and Mark Short, along with their children Liana, Mark and Willow. 
   
   Photo credit: Facebook 
   
   The district attorney's office also said Sunday morning that responding officers discovered what appears to be a handwritten "murder-suicide" note in the home, as well as a handgun "near one of the deceased adults." 
   
   Authorities have not said what the note contained or who they think was the shooter, but noted that an investigation revealed the couple had been having "domestic issues." The family had also been grappling with a child's illness and post-traumatic stress. 
   
   A recent photo posted on Mark Short Sr.'s Facebook page shows him with his three children. 
   
   Photo credit: Facebook 
   
   Articles in The Reading Eagle in 2014 and The New York Times in 2015 profiled the family after Willow, the youngest of their three children, underwent a heart transplant as an infant. The news stories detailed the family's difficulties obtaining anti-rejection medication for Willow. 
   
   A blog post Megan Short wrote in April about her family's ordeal treating Willow's heart condition sheds some light on the struggles they faced. 
   
   In a post titled "Learning to Heal: My Experience with PTSD" on the Philly at Heart blog, Megan Short wrote of watching her daughter undergo heart surgery as a baby, and of the lasting impact the traumatic experience left on her. 
   
   "There are very few moments when you can clearly see your life as separated into the before and after," Megan Short wrote. "Having a child born with a severe congenital heart defect has been the most significant shift of my life." 
   
   Family Dead in Berks County Murder-Suicide 
   
   NBC10's Matt DeLucia is on the scene at a murder-suicide in Berks County. Five people, including three children, were killed inside their home in on Winding Brook Road in Sinking Spring. (Published Sunday, Aug. 7, 2016) 
   
   In the post, Megan Short recounts not being able to hold Willow until three days after she was born, before sending the baby to surgery. 
   
   "I can still feel the emotions and fear as the doctors told me that she would not survive the massive bleeding she was experiencing post-surgery," the mother wrote. "I still see her tiny heart beating through the dressing used to cover her open chest and all the tubes and wires and machines as I wondered if they would be able to keep her alive until a donor heart became available." 
   
   The mother chronicled the heartbreaking struggles she and her family faced as Willow underwent treatment for her heart condition and eventually came home, and she wrote about the affect it had on her as a mother and as a person. 
   
   "I have anxiety and nightmares. Certain smells and hallways trigger memories every single time ... None of this ever got easier," she wrote, adding that she began taking medication and going to therapy for PTSD. 
   
   "As I work on my own mental healing, I wanted to share my experience so that other parents know they are not alone," Megan Short wrote. "Sometimes you will feel even worse during the process, but keep going. It is worth it." 
   
   Despite the family's struggles, Mark Short's Facebook profile shows the couple and their three blond-haired children smiling in dozens of photos. 
   
   In another picture of him with his wife that he posted in December, the two grin in black and white. 
   
   "She's still the most beautiful girl that I've ever met," Mark Short Sr. wrote in a comment on the photo. "I'm the luckiest guy in the world to have her as my life and the mother of my three amazing children." 
   
   The Associated Press contributed to this story. 
   
   If you or someone you know is considering suicide, contact the National Suicide Prevention Lifeline at 1-800-273-8255 or visit the American Foundation for Suicide Prevention. 
   
   
   
   ||||| Sunday October 19, 2014 12:01 AM 
   
   - Treatment of HLHS typically requires open-heart surgery to redirect oxygen-rich blood and oxygen-poor blood in a series of three reconstructive operations known as staged reconstruction. In Willow's case, the right side of her heart was also weakened. Following the first stage of the reconstruction, doctors deemed a transplant her only long-term hope. 
   
   - The aortic valve, which separates the left ventricle and the aorta, is too small or completely closed. In Willow's case, the left chamber was enlarged instead of closed off. 
   
   Hypoplastic left heart syndrome (HLHS) is a severe congenital heart defect in which the left side of the heart is underdeveloped. The heart's left side has the job of pumping oxygenated blood into the aorta, the large artery that carries blood to the body. In a typical HLHS case: - The mitral valve, which separates the two left chambers of the heart, is too small or completely closed. - The left ventricle (the lower, pumping chamber) is very small. 
   
   Few parents would call listening to a baby's cries one of the blessings of child rearing. 
   
   But for Megan and Mark Short, hearing daughter Willow's early whimpers develop into occasional screams over the last five months has been nothing short of a dream come true. 
   
   The Sinking Spring couple found out nearly halfway through Megan's pregnancy that they would likely lose their baby in the womb. Their little girl's heart wasn't fully formed and couldn't pump blood efficiently, threatening her brain, her vital organs and her life. 
   
   But weekly, doctor's visit after doctor's visit, the baby surprised the experts. She outlived a virtual death sentence with heart and lungs strong enough to deliver a lusty cry at her birth at Children's Hospital of Philadelphia on May 6. 
   
   The crying calmed quickly, however, as Willow was placed on oxygen and multiple monitors then whisked off to the cardiac intensive care unit. Before she turned a day old, she was intubated and connected to a ventilator. 
   
   "She would cry, but you couldn't hear her because of all the tubes," Mark recalled. "There was a while where we weren't sure we would hear that sound again." 
   
   Willow's prognosis remained grim. 
   
   First surgery 
   
   Doctors performed the first stage of a three-part surgery when Willow was 3 days old, hoping to repair her left ventricle and redirect her circulation. 
   
   While her tiny chest was open, they found an additional tunnel defect, adding to the complexity of her case. After the procedure ended, 8-pound, 9-ounce Willow bled enough to require 16 transfusions. 
   
   The medical team was able to stem the bleeding, but Willow wouldn't be a candidate for the follow-up procedures. Doctors placed her on a heart-and-lung bypass machine and again prepared her parents for the worst. 
   
   Added to the national transplant list, Willow's survival depended on the all-too-rare donation of another baby's heart. 
   
   "Her heart was very sick going in," said Dr. Joseph Rossano, the cardiologist who managed Willow's treatment. "We weren't sure we could keep her alive to get a transplant." 
   
   Heart becomes available 
   
   As Willow entered her seventh day of life, Dr. Robert Shaddy called Megan and Mark as they slept fitfully at the hospital. Upon hearing the cellphone, the couple's first thoughts were that Willow had died. 
   
   Instead, Shaddy told them a heart had become available, and Willow would be wheeled into surgery at daybreak. 
   
   On May 13, Willow Rose became one of just three babies to have a heart transplant this year at CHOP by July 31, the latest available data. 
   
   American doctors have successfully transplanted new hearts into babies within hours of their births since the mid-1980s, but such procedures remain few and far between. 
   
   Only 64 babies under age 1 had received a heart transplant through July 31, according to the Organ Procurement and Transplantation Network. Another 56 were waiting for a new heart as of Oct. 3. Rossano acknowledged that many will die while waiting for help because donor organs simply aren't available. 
   
   Willow suffered from a variation of hypoplastic left heart syndrome, or HLHS. It is a rare and complex congenital birth defect. Though it sometimes runs in families, doctors don't know the cause. 
   
   First sign of trouble 
   
   The first sign of trouble for Willow came during a routine ultrasound at 19 weeks on a snowy day that left Megan home with children Mark Jr., 3, and Liana, 6. 
   
   Having had two routine pregnancies, she sent Mark into work and trudged into the imaging office with the kids in tow. A few minutes into the process, the technician grew quiet. When Megan prodded her, she would only say that she was getting a better view of the heart. 
   
   Afterward, trying to stem the tears for her children's sake, Megan dialed Mark and told him they'd been referred to Hershey Medical Center. A Philly native, Megan opted to see specialists at Children's Hospital, ranked No. 3 for pediatric cardiology by U.S. News and World Report. 
   
   On Jan. 2, the Shorts learned their then-unnamed baby had a dysplastic aortic valve, which allowed blood to leak out of and flow back into the chamber. It was enlarging her left ventricle, and the right side of her heart also appeared weak. 
   
   "They told us she very likely would be stillborn, probably within the next three weeks," remembers Megan, who had begun to feel her baby move after that scary ultrasound. "That made it that much harder." 
   
   In the official paperwork, doctors described Willow as having "severe fetal un-wellness with significant risk of demise." 
   
   "They didn't have much hope at all," Mark said. 
   
   Forming a bond 
   
   Over the next few weeks, the Shorts worked hard to bond with Willow. They learned her gender and named her, choosing Willow because of the tree's flexibility and strength and Rose for the flower adored by St. Therese. They had 4-D ultrasound photos taken. 
   
   As the days and weeks trickled by, Megan turned increasingly to her faith, knowing that family members, friends and strangers were praying for her family. 
   
   "I started to feel like maybe God was listening to those prayers," said Megan, who moved to Philadelphia with her mom at 37 weeks pregnant. 
   
   Doctors now seemed more optimistic that Willow would live until a scheduled C-section, but Megan would need to be close to the hospital in case she went into labor before then. 
   
   "We still didn't know what was going to happen when she was born," she remembered. "She may or may not even breathe." 
   
   Back at home 
   
   Back at home, Liana and Mark Jr. knew only that their little sister was having trouble growing. Telling the children that Willow might not survive was unimaginable. 
   
   On delivery day, Megan's mom stayed with the children so Mark and Megan could be together as Willow entered the world. 
   
   "I just wanted her to cry, and she did, she screamed," said Megan, sharing her memory of the day with a wide-eyed Willow on her lap. 
   
   While Megan recovered, Mark went with the baby to the ICU. 
   
   The next day, their siblings came to the hospital. A Child Life specialist used a doll to demonstrate how Willow would look attached to wires and machines. Neither child seemed fazed. 
   
   "Liana was just in love," said Megan. "She talked to her. She held her hand." 
   
   But like her parents, she would have to wait to hold Willow. 
   
   No one could pick her up until just prior to the first surgery. The wait had been agonizing, and now they were snuggling their little girl knowing she might not come back from the operation. 
   
   "Bringing her to the surgery, it's the worst moment of your entire life," said Megan, who watched the gurney until her baby was out of sight. 
   
   In three days, they would do it all again. 
   
   Though Willow struggled after her first surgery, the transplant was a remarkable success. Having the two surgeries so close together added some risk, but it also meant doctors could access Willow's chest cavity more easily. 
   
   "We knew we might not get another opportunity," Rossano said. 
   
   The Shorts had been prepped for a long day. A chaplain stayed with them in the waiting area, with nurses bringing regular updates from the operating room. What was supposed to be a four- to five-hour surgery took just three hours. 
   
   A noticeable change 
   
   Neither Mark nor Megan recalls the exact words the doctor used to describe how well the transplant had gone. But neither can forget how their daughter changed once she had a fully functioning heart. 
   
   Even on a ventilator and paralytic medication, she was more alert and healthier looking than ever. 
   
   "It was amazing how different she was," Megan said. "She was so pink compared to how blue she was just hours before." 
   
   By May 29, Willow's heart was working so efficiently that doctors removed her from oxygen. 
   
   Some irregular heartbeats required catheterization, during which doctors removed a microscopic piece of her heart, to check for inflammation or antibodies. But Willow showed no signs of rejection. 
   
   Rossano said that's common in babies because their immune system is still developing. Their bodies don't have the same instinct to fight off a foreign organ. Most infants who die following transplants do so because their bodies were already so ravaged, their other organs and systems compromised by lack of blood or oxygen and dependence on strong medications. 
   
   Doctors OK'd Willow's release on June 26, after she finally began gaining weight. She'll be monitored for developmental delays that could have been caused by a lack of oxygen in utero, and there's a chance medications could permanently damage her kidneys. 
   
   Susceptible to illness 
   
   The immunosuppressant she needs for the rest of her life also makes her susceptible to common illnesses. Keeping germs out of the house is challenging when the children, and two big dogs, look for opportunities to touch (or lick) their sister. 
   
   In September, Willow came down with viral pneumonia. Add that to teething, general congestion, outpatient clinic visits and physical and occupational therapy appointments, and it's enough to leave her mom exhausted. 
   
   But when you know the baby you're comforting has beaten the odds, perspective changes. Monthly heart monitoring, multiple daily injections and vats of hand sanitizer are just reality for the Shorts. 
   
   "You have to laugh," Megan said. "Otherwise, you would cry." 
   
   In addition to her new heart, Willow brought home several gifts from the hospital. Among them were a pink, knitted blanket with the words "Heart Warrior" and a lengthy necklace filled with beads of courage. Each bead represents a procedure such as a transfusion or the transplant itself (a big red heart). One day Willow will be able to use it to share her story with others. 
   
   As Mark explained its significance, Liana went from wearing it to removing beads. Chaos reigned during a photo session, completely normal for a family of five. 
   
   At moments like these, Megan thinks of the family who made her joy possible. 
   
   "Someone else's child died so that my child could live," she said. "I know they're in so much pain. I am so thankful." 
   
   Contact Kimberly Marselas: life@readingeagle.com. 
   
   Organ donor advocates 
   
   The Shorts have been advocates for organ donation since 2012, when Megan lost an uncle who waited months for a new liver. 
   
   Megan's extended family has participated in the Dash for Organ and Tissue Donor Awareness benefiting the Gift of Life, a nonprofit organization serving eastern Pennsylvania, southern New Jersey and Delaware. 
   
   Though they've used a Tasmanian Devil theme in the past, Megan plans to walk in honor of her uncle and Willow next spring under the name “Willow's Tasmanian Angels.” 
   
   Megan also hopes to create an event around the anniversary of Willow's transplant to celebrate the donor who made her daughter's life possible and urge others to consider making the gift of life. 
   
   One in 100 children are born with a heart defect. Most do not need new organs, but when they do, the wait is agonizing for their families. 
   
   As of Oct. 3, 180 people, 19 of them children, were waiting for heart transplants in Pennsylvania, according to the Organ Procurement and Transplantation Network, or OPTN. Nationwide, 1,896 minors are candidates. 
   
   In all, 123,762 Americans are in need of a transplant, with 79,255 actively waiting and eligible on Oct. 7. 
   
   OPTN estimates 21 people die each day while waiting for a donation. 
   
   In Pennsylvania, adults can register to become a donor by adding a designation to their driver's license. There's no need to wait until renewal: The process can be done online at anytime. Use the driver's license/photo identification link at www.dot4.state.pa.us.
target: – In May of 2014, Willow Short received a heart transplant when she was just six days old. On Saturday, she was found shot to death along with the rest of her family in what police believe was a murder-suicide. The bodies of Mark Short, 40, Megan Short, 33, and children Willow, 2, Mark Jr., 5, and Lianna, 8, were found in their home in Sinking Spring, Pa., on Saturday afternoon when a relative called police after Megan didn't show up for a lunch date. Cops haven't revealed which parent they believe was responsible for the unfathomable crime, but they say a handwritten suicide note was found in the home and a handgun was found near the body of one of the adults, NBC Philadelphia reports. Police say the couple had "domestic issues," and a friend in the neighborhood tells the Reading Eagle that Megan was planning to leave Mark and had been open about it, posting on Facebook that she needed people to help her move out on Friday. In 2014, the Eagle reported on Willow's struggle to survive her first week of life. In 2015, the Shorts and their struggle to obtain anti-rejection medicine for Willow were featured in a New York Times story. In April, Megan wrote a blog post about dealing with PTSD after Willow's illness, saying she still suffered from anxiety and nightmares and it had taken her two years to realize how badly she had been impacted by the ordeal, the Philadelphia Inquirer reports.