The Indian Stammering Association

The Indian Stammering Association (TISA) is a public charitable trust and self-help movement for people in India who stammer. In India person who stammer (PWS) face lot of stigma at home and outside as they are treated similar to like a gay or lesbians with parents chiding child with similar qualities and the society too not accepting them favourably.
Background.
It is estimated that 11 to 12 million people in India stammer. Stammering is a physiological disorder. The World Health Organization classification of stuttering (stammering), in the section "Mental and behavioural disorders", is F98.5, where the definition is given as "Speech that is characterised by frequent repetition or prolongation of sounds or syllables or words, or by frequent hesitations or pauses that disrupt the rhythmic flow of speech. It should be classified as a disorder only if its severity is such as to markedly disturb the fluency of speech." However, as there is a shortage of good speech therapists in India, speech therapy is highly expensive, and the government of India does not officially recognise the condition as a handicap. They face problems getting jobs and even after getting them they find unable to grow in organisation and this makes them feel shame,guilt,fear of not being accepted as part of organisation. Many of the stammering people avoid talking and prefer to communicate through writing,texting or e-mailing as they are unable to spell even simple words.
Formation.
TISA, grew out of a e-network managed by Viren Gandhi from Mumbai operated through Yahoo group,and started on 3 April 2001 by an Indian PWS, Dr Satyendra K Srivastava. The blog called Haqlana (Hindi for stammer),where Srivastava first got public with this condition and later was joined by responses from members across the country, highlighting the realisation the real-time experiences, like difficulty in answering attendance in schools, job interviews, or fear of boycott from society, was everywhere.By late 2010 the group had 576 members, contributing almost 6000 posts on issues including speech therapy reviews, self-help ideas and emotional support. One of the experiences Dr Satyendra recalls is from his childhood days when he had a hard time buying bus tickets and instead of his scheduled stop he would end up mentioning the previous before or subsequent ones and then reaching his place managing through other means. Currently,Srivastava spends time in counselling various young boys and girls for the e-mail queries seeking help for appearing at interviews and anxious parents on the dilemma of their child condition if one or both of them are suffering from it.
Some members of the group met in person for the first time in Mumbai on 13 April 2008. They decided to start a self-help association, to be named The Indian Stammering Association. TISA started a blog on 9 May 2008. This blog was the first Indian blog on stammering in open public internet space, unlike chat groups, which required registration and were open primarily to people who stammer.
There had been other parallel and/or preceding attempts by Indians to seek and offer help with stammering. Inspired by Keith Boss, a trustee of the British Stammering Association and board member of the International Stuttering Association, a small group of Indians started an internet group. One Indian PWS contributed to International Stammering Awareness Day in 2006 and another attended the world congress in Croatia in 2007. A group in Chennai had been meeting under the statute of Mahatma Gandhi on the Marina Beach from 2001. The Samagra Trust also helped TISA in its formative years, by publishing a booklet on stammering among other things.
The Indian Stammering Association launched its official website on 15 August 2009. It was formally registered as Public Charitable Trust Number 6055 on 13 November 2009. The trust's head office is located at Herbertpur, Dehradun, Uttarakhand, India. By October 2020,the body consisted of self-help groups,online courses,daily virtual meetings,counselling,communication workshops,and others and has more than 8000 active members from places like Pune,Jaipur and Lucknow besides in Metro cities.
Activities.
The trust has conducted self-help workshops, based on acceptance, breathing techniques and CALMS approach in various Indian cities. A model of the workshop is freely available on the internet. TISA promotes self-help groups in different cities, has made available a self-help manual that combines the modern approach to stammering with eastern concepts of self-acceptance, and produces a newsletter. TISA is also participating in genetic research in stammering in India. TISA organised a three-day National Conference at IHS, Bhubaneshwar (31st Dec 2011 to 2nd Jan 2012). Twenty five participants from different parts of the country learned from each other, shared their experiences and did sight seeing. Dr Satya Mahapatra and Dr Elaine Robin from National Stuttering Association (USA) gave the inaugural address and shared their wisdom with the participants over the three days. In 2019, Hrithik Roshan,one of the superstars of Indian Film industry, Bollywood,had agreed to become brand ambassador of the organisation.
Self-help groups.
Groups are open to those taking speech therapy from any source, and are facilitated by a volunteer PWS. This facilitator offers the opportunity to practise communication skills in a group setting, offer and receive counseling, and gain information on techniques and therapists. TISA regards the optimum number of participants for a SHG to be no more than 12. There is no minimum number. Cities with TISA self-help groups include Bangalore, Mumbai, Surat, Jammu, Herbertpur, Goa, Pune, Delhi, Chennai, Dehradun, Meerut, Hyderabad, Kolkata, Chandigarh, Jaipur, Ludhiana and Ahmedabad.
TISA's self-help communication workshops last from 3–10 days, depending on the participants' needs and availability of time. These workshops are based on Acceptance: "Even though I stammer, I accept myself whole heartedly, because there is an inner perfection in me". Breathing techniques based on Pranayama are introduced as an aid to relaxation and to a speech driven by belly breathing. Western techniques are also incorporated and the four techniques, adapted from a book by Peter Reitzes, among other sources. Accepting and serving other PWS is an important concluding theme in the workshop. Some participants have started their own self-help groups after the workshop.
The members also interact through many communities, including three on social networking site Orkut and several e-groups for PWS where they discuss their lives and problems and also comfort and support each other,knowing that each one are not alone and the condition is common,where they are known by their nick names.
Advocacy.
In October 2010 TISA filed a public interest writ petition against the director and producers of the film "Golmaal 3" and the censor board of India at Uttarakhand High Court. It objected to the film's portrayal of stammerers as objects of ridicule, on the grounds that this promoted discrimination and the teasing and bullying of people who stammer.
The film-makers and Censor Board have to respond to the court notice by 14 December 2010.
Philosophy.
TISA philosophy consists of two precepts: "Accept stammering and work on communication".