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spec: In July Ian visited both girls in one trip ! After one of those trips from hell where you find yourself stranded in the US , wearing only shorts , T-shirt and sandals , carrying only a computer ( no toothbrush , sweater , or clean undies ) , at an airport thousands of miles from anywhere on your itinerary , getting to a hotel at 1 AM ( after a long argy-bargy with airline officials ) and being collected from it at 4 AM , with a dinner voucher and a breakfast voucher ( only to be used on that day , at that hotel ) , he eventually arrived at Calgary and set off in search of Anna . We really think of both girls as in their " gap decade , " a delightful phrase coined in a friend 's Christmas letter to extend the traditional British " gap year . Stephanie is a wheelchair-bound eight-year-old with Rett 's syndrome , an unusual condition that affects only girls . In fact Australia has been an international leader in this field . You eat everything with your fingers : rice with sloppy sauce , breads , and dishes of vegetables and meats slathered in delicious liquids . Mr. Faurschou : If I may be perhaps a little more specific . You start by trying to keep your fingers clean by sandwiching chunks of food between bread , but it 's hopeless . We are not to jostle God out of his right . It is definitely helpful when a group has a concern that needs to be addressed . He had climbed into an empty laundry basket that was back in a corner , then pulled a long dress around in front of him . They're very used to getting out there and making a difference , '' she said . I 'd say impartiality is very important . `` he asked , pointing her to a different direction . By now you've long given up trying to keep your fingers clean , your banana leaf is running with juices from the food , your legs are cramped , your bottom aches from the hard floor , and the kids have given up trying to stifle their laughter . On our second , family , visit the girls were duly awed by his size , and he by their maturity . On the whole the girls coped really well on their own , with the help of some friends : we began to wonder what parents are for ! We have been reorganizing this program to make it a more effective , efficient instrument - and that process will continue this year . We filled the pool with balloons . Australian 's most famous composer , Grainger invented some amazing musical instruments , like huge vacuum-cleaner-powered recorders on which the holes could be gradually uncovered by unwinding great rolls of diagonally-oriented paper , like a giant printing press .