Our girl has a rare genetic disorder that causes an intense epilepsy that ' s extremely difficult to control . She ' s currently been in hospital for 3 months and is on 5 antiepileptic drugs and a ketogenic diet . Long term prognosis is quite poor there ' s only 6 cases of this condition documented internationally and the average life expectancy is 2 years . We will be moving to our regional hospital next week and hope to have her home for Christmas . We met a couple whose son had DiGeorge here a while ago so we got a small taste what it ' s like in the early stages at least . Edit if anyone suggests cannabis oil to me I will lose the plot . Not anti drug or anything but it can ' t be got in Ireland . <| sep |> Iar numarul de homosexualilesbi care doresc sa se casatoreasca este iarasi infim , fapt pentru care toata situatia devine bizara si hilara , discutand cu atat tamtam despre ceva ce afecteaza cam 0 . 3 % din populatie , at it ' s best . Ok , si cine face tot acest tamtam , cine strange semnaturi si le depune la Parlament etc pe tema acestui nonsubiect ? Cand pe 3 milioane incepe sai doara prea mult grija de 0 . 3 % incepi sati pui intrebari cu privire la prioritatile acelor milioane .