You ' re tripping , Ezeli preinjury last year was way better than current Javale . Postinjury though . ouch . <| sep |> Thank you so much for sharing all of this ! I appreciate it so so much , both for my own health ' s sake and for my curiosity as a hopeful premed student . I can understand why you feel that losing the ability to eat on your own would be the worst part , as I too find it to be one of my favourite comforts . I ' ve struggled a lot just with the possibility of lactose intolerance for the same reason , not wanting to lose out on that comfort . I will admit that I don ' t really know of any of the doctors you mentioned , but that ' s just because I ' m Canadian . I ' m very frustrated by the fact that so many doctors are refusing to see EDS patients , ethically and morally it horrifies me . It ' s part of what drives me to want to be a part of the health care field . Thanks , also , for the advice on keeping the diary of my symptoms . I was advised by a doctor to start keeping a pain diary , but I ' m pretty sure that ' s because she was trying to pass me off as a fibromyalgia patient , but I don ' t personally think that is fair or a good explanation of all that I ' m dealing with . I probably should be keeping better track of my weight , currently I am still slightly overweight but I did lose between 10 and 20 lbs in the past year , which is extremely unusual for me . The ER comment is really interesting , because I in the past had no choice of which hospital to go to small town , only one hospital the next town over , but now I live where there are five connected hospitals within half an hour , and a much better hospital plus med school an hour and fifteen minutes away . It ' s still tough without being able to drive , and with limited public transportation , but my boyfriend and his family are very helpful when I need it . I also appreciate the last paragraph , as I said I ' m hopefully med school bound , so I have a slightly better understanding of this stuff than the average layperson , but it ' s always good to have a little reassurance . I hope you ' re able to receive the treatment you ' re looking into , and that it does improve your quality of life . It seems so unfair that one person can be afflicted with so many troubles , but I suppose that ' s how the genetic lottery works a bit of a Murphy ' s Law situation , whatever can go wrong will . Thanks again for all of this incredibly detailed information .