홈 입니다 . › 참여 › Rare Disease Day 2013 “ Rare Disorders without Borders ” › Let ’ s Recognize Rare Disease Day Every Year ! Let ’ s Recognize Rare Disease Day Every Year ! 
 짹 짹짹 	 Send a letter to your US Governor asking them to declare the last day of February each year as Rare Disease Day ! You can get your state ’ s Governor information HERE . 
 • Thousands of residents of our state are affected by rare diseases , as patients , friends and family , 보호자 , physicians and other medical professionals , providers of social services , and researchers seeking to develop safe , effective treatments