The Namesake Post
PWS Resources and Treatments
PWS Glossary
Need an Editor?
OSS Richmond!
One SMALL Step Richmond has already raised $11,450 toward our goal of $30,000 for PWS research!! We are #27 in the world among 72 walks. Help us toward our goal! And if you register to walk with us on the 26th, all you have to do is raise $40 and you get an awesome OSS T-shirt. It will be a great family event! Thank you to all those who have supported us thus far!
http://onesmallstep.fpwr.org/dw/users/deanmachine/Richmond2013
Wow! Congratulations.Keep up the good work.
Scuba diving in Indonesia
Ali Foley Shenk
I live in Richmond, VA, with my husband Bobby, a Presbyterian minister, and our three sons: Cole (9), Dean (7), and Emmett (5.5). Dean was diagnosed with Prader-Willi Syndrome (PWS) at 3 weeks old and this blog is mostly about life with a child with PWS. Currently, I work from home as a freelance editor and writer and take care of the boys. I play in a local "alternafolkrock" band called wkndr (www.facebook.com/wkndr). We have a blast. :) Occasionally, I sleep at night. I have an M.A. in Counseling (Marriage & Family Therapy concentration) and a B.A. in Early Childhood Education and Human Development, neither of which drive my current work, but both inform my daily life.
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Fave blogs and sites
Different Dream
Is It Easier or Worse To Be an EA/TEF Parent in the Time of COVID?
Foundation for Prader-Willi Research Canada
Live Life Full Masks
Our So-Called Life...
Tired and Thankful
Amazing Adventures of Ayden Jane
Growing Up with PWS
Birthday Appreciation
Lydia's bedroom refresh
me and my house
Cystic Fibrosis:We're Learning As We Go
Upper GI Series FAIL
A Real Conversation
Mrs. Moneysaver
Bon Appetit Placemats – 20% Off
Say What You Need to Say
Snow days, how you challenge my sanity
My Longest Year
Life Legerski Style
Overwhelmed by decisions
Falling For Baby
Our One SMALL Step Video
Funding a Cure
A Healthier You Too
Two Year Old Hamburgers!
Delilah's Journey
odd girl out...?
Coming along quite nicely.
Nick's Adventures!
My baby cousin
Foundation for Prader-Willi Research
Wolf's on Safari
My Life, Uncensored: Life, Words and Love
The Hedstrom Family
three pugs & a baby
Living With Special Needs
Feeding Philosophies by Melanie Silverman
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