DuchenneXchange.org Online Platform for Duchenne Community Reaches Milestones with Partner Organizations and Users
The DuchenneXchange.org has a reason to celebrate on World Duchenne Day. The dedicated online platform for the Duchenne muscular dystrophy (DMD) community announced today it has surpassed enrollment goals of partner organizations and users since it was introduced to the community just five weeks ago. To date, 13 Duchenne-related nonprofit organizations and 700 community users have joined, numbers that the DuchenneXchange.org set for the three-month mark.
"We are absolutely thrilled that the Duchenne community has embraced the DuchenneXchange. It demonstrates how united the community is and its need for vetted, trustworthy information in a safe online space," said Debra Miller, founder and CEO of CureDuchenne, the nonprofit that spearheaded the project with developer rareLife solutions.
Source: https://www.businesswire.com/news/home/20180907005239/en/DuchenneXchange.org-Online-Platform-Duchenne-Community-Reaches-Milestones
A Guide for Parents: Duchenne Muscular Dystrophy UK
Duchenne muscular dystrophy is a life-sh...
Duchenne UK: DMD Patient and Caregiver Survey Results
https://www.youtube.com/watch?v=d2EpSB8R...
CureDuchenne Futures – The Changing Needs of the Patient with Duchenne – Part 2
https://www.youtube.com/watch?v=oI59PggM...
Raising awareness for Duchenne Muscular Dystrophy
Connor has Duchenne Muscular Dystrophy a...
A Message from Debra Miller, Founder and CEO CureDuchenne
Receiving the diagnosis for Duchenne was...
Answering the call to serve
Scouting instills in one the call to ser...