The AIDS pandemic has had a devastating effect on humanity, both physically and psychologically. It has killed more people than any other disease in history, and it is still killing people today.
AIDS is a deadly, preventable disease caused by the human immunodeficiency virus (HIV). HIV attacks the human immune system, making the person vulnerable to other infections and illnesses. There is no cure for AIDS or HIV, but there are treatments available that allow people who adhere to medication to live a normal life by managing their chronic condition.
When AIDS first surfaced in the early 1980s, it was a mystery illness, and no studies could find common ground on what caused it. No one knew how it spread or how to treat it. However, it quickly became clear that AIDS was a devastating disease and took a toll on society.
According to the World Health Organization, since the beginning of the epidemic, 84.2 million people have been infected with the HIV virus, and about 40.1 million people have died of AIDS-related illnesses. Globally, 38.4 million people were living with HIV at the end of 2021.
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AIDS does not discriminate
The AIDS crisis has had a profound impact on humanity since its emergence. From the outset, HIV/AIDS has resulted in the physical and emotional devastation of those directly affected by it, as well as their families, friends, communities, and beyond.
AIDS has affected and continues to affect everyone in some way. AIDS does not discriminate, affecting people of all ages and races. Nor is AIDS a disease that is limited to any one region of the world. In fact, AIDS is now present in 26 countries in Africa and the Caribbean.
According to the World Health Organization (WHO), AIDS is the leading cause of death in people aged 15-49 and the second leading cause of death in all age groups. This epidemic is now affecting men, women, and young people of all races in all parts of the world. It has affected gay, bisexual, and transgender people disproportionately and even affected people who were not sexually active.
The World Health Organization (WHO) formally recognized December 1st as World AIDS Day in 1987 in response to the AIDS pandemic that was then rapidly spreading. At the time, there were only a handful of cases worldwide, and no vaccine or treatment programs for AIDS were available.
However, thanks to aggressive public health efforts, communities of people that demanded awareness, and the development of effective treatments and vaccines, the number of people living with AIDS has decreased by more than 50 percent since 1990, and reduced mortality from HIV is a continuous trend.
These achievements happened mostly thanks to the people who marched all throughout the United States demanding better care when President Reagan refused to speak or acknowledge the crisis for many years.
Why World AIDS Day matters as much today as it did in the 90s
In 2012, the World Health Organization (WHO) declared that AIDS was no longer a global emergency, and World AIDS Day was changed to December 1st as the official global day of remembrance. This change was made to emphasize that the fight against AIDS is now a global effort and that we must all continue to work together to achieve the ultimate goal of ending the pandemic.
Today, World AIDS Day is an important day to reflect on the progress that has been made in the fight against AIDS. However, there is still much work to be done. We must continue to work together to support research and development into new treatments and vaccines and to raise awareness about HIV's ongoing transmission and the importance of the fight against it.
World AIDS Day is an opportunity to renew our commitment to fight AIDS and make sure no person is left behind. We must work together to find new ways to prevent the disease and support people living with AIDS as they strive for a better life. We must fight against the stigma and shame that impact those who are HIV-positive.
Fortunately, there are thousands, if not millions, of community health workers willing to carry on the fight against the deadly enemy, raise awareness, and provide help and support to those who have fallen victim to the disease.
There are also people happy to acknowledge their effort and organize events and awards such as the Paul Andrew Starke Warrior Awards. This year, on December 1st, the 22nd Annual Paul Andrew Starke Warrior Awards took place in the Aquatics and Recreation Center, San Vicente and La Cienega rooms, West Hollywood Park, and among the winners, there was also a dear friend of mine, Francis Ocon, RN and Medical Case Manager at Men's Health Foundation. I previously worked at Men's Health Foundation with Francis Ocon RN, Medical Case Manager, and David Hoxsey, LCSW, Patient Care Manager.
These awards are presented to staff and volunteers of local organizations and health care facilities who provide outstanding HIV/AIDS prevention and care services, and Francis Ocon has changed the lives of many patients living with HIV. His work at the Men's Health Foundation provides medical education and tools to assist with medication adherence, ensures expert care for people living with HIV and continued communication with medical providers, and provides STI/HIV treatments.
These are just a few things Francis provides at MHF. His work and the work of the people providing support, like David Hoxsey, through the foundation have made a difference for many HIV-infected persons and allowed them to live longer and happier lives.
The purpose of HIV support groups
World AIDS Day is a reminder of the importance of promoting HIV prevention, awareness, and treatment, fighting stigma and discrimination, and supporting people in their fight against HIV.
In response to this devastating pandemic, support groups have become a cornerstone for those living with HIV/AIDS. These safe spaces provide emotional relief from the stigma, isolation, and loneliness that can come from having this life-altering diagnosis. They also provide education about treatments, therapies, and preventative care that help people manage their diagnosis while leading healthy lives.
People living with HIV need a unique and comprehensive level of care. Support groups provide a valuable resource for those managing the physical, mental, and emotional toll of this life-changing diagnosis.
An HIV support group typically consists of people living with HIV/AIDS as well as family members, friends, healthcare professionals, educators, researchers, and counselors. Participants have the opportunity to share stories about living with the virus in a non-judgmental atmosphere where everyone is accepted for who they are.
There is no one right way to organize an HIV support group, just as there is no one right way to approach joining a support group. What matters most is that the group is comfortable for everyone who attends.
If you are unsure whether or not a group is a right fit for you, consider speaking with a health care provider, licensed therapist, or HIV specialist. They can help you explore your options and find the right group for you.
Benefits of joining an HIV support group
Many individuals living with HIV feel isolated and alone, making it hard to handle their diagnosis. Joining an HIV support group provides an invaluable way for those living with HIV to find connection and understanding. Here are some of the benefits and key health outcomes of joining a group:
Supportive environment.
HIV/AIDS support groups are an important way to find community and strength through shared experiences. They provide a platform for individuals who have been diagnosed with the virus to talk about their struggles, share advice, and receive emotional encouragement from others in similar circumstances. Participants often find comfort in being surrounded by people who understand their feelings without judgment or fear of stigma.
Shared knowledge.
As members of a group, you can learn from each other and gain insights that you may not have been able to obtain on your own. This can help you better understand and cope with HIV-related challenges. Members benefit from peer-to-peer advice on lifestyle changes that may help reduce symptoms or improve overall health. This can include diet modifications, exercise habits, or stress management techniques. Not only do these groups offer emotional support, but they also provide practical advice on managing day-to-day life with HIV/AIDS. HIV support groups can be a great source of information about treatment options, medical care providers, insurance coverage options, legal services, or other assistance programs available in the community.
Opportunities for self-reflection and growth.
HIV support groups offer individuals a space to reflect on their experiences with HIV and learn from others who have faced the same challenges. Through discussing common experiences and challenges, members can develop skills that will help them navigate their HIV journey successfully. By sharing their experiences and feelings with others, they can learn about their strengths and weaknesses and begin to develop new coping mechanisms.
Sharing resources.
People in these support groups can provide much-needed resources for individuals who may feel overwhelmed by their diagnosis or lack access to necessary health care services. Members have access to other members and group leaders who can provide information or insight about treatments or medications available for the virus, as well as resources such as legal aid or housing assistance programs if needed.
Having a network of other people going through similar experiences not only provides emotional support but also helps those affected by HIV gain access to accurate information about the virus and how it affects their body, learn tips on managing medication, receive assistance when facing stigma or discrimination due to their diagnosis, and make connections with organizations providing services like housing or financial assistance.
Finding an HIV support group near you
The support of a community that understands the challenges associated with this diagnosis can be invaluable in helping individuals to feel less alone and more optimistic about their future. Enlisting the help of a local group can provide access to resources, guidance, and understanding that can greatly improve the quality of life for those living with HIV.
HIV support groups are led by professionals who understand the unique issues that accompany an HIV diagnosis. Members will have access to important information on treatments, medications, diet, exercise, and mental health strategies which can help them better manage their condition. Additionally, they will also have opportunities to develop meaningful connections with peers who share similar experiences while learning from one another's stories.
If you're interested in finding a support group in your area, there are several online resources available. The AIDS Foundation of America has a search tool available online that can help you find a support group in your area. You can also contact your local AIDS organization to see if they know of any local support groups.
HIV/AIDS support groups in Los Angeles
HIV AIDS support groups are an important resource for people living with HIV/AIDS in Los Angeles. Not only do these groups provide emotional and psychological support for individuals, but they also help to reduce the stigma around HIV/AIDS in the community.
The Los Angeles area is home to a variety of HIV/AIDS support groups that offer a variety of services, from counseling and educational programs to medical assistance and advocacy resources. Here are some of the most popular groups in the city:
The Los Angeles LGBT Center offers support groups for people living with HIV and AIDS.
AIDS Healthcare Foundation Los Angeles provides support groups and counseling.
The Whitman-Walker Clinic offers support groups for people living with HIV and AIDS.
The West Hollywood AIDS Support Group meets every other Wednesday at the WestHollywood Recreation Center.
SoCal club is focused on ages 12-29 and BIPOC population.
Being Alive provides services for those impacted by HIV. Free support groups and therapy.
APAIT focuses on Asian and Pacific Islanders with HIV.
APLA: various HIV support groups (focused on older adults), women and therapy services.
Minority AIDS project – weekly groups in both Spanish and English.
Bienestar – offers various groups in both Spanish and English as well as therapy services.
Many of these support groups also offer guest speakers, such as doctors and other healthcare professionals, who share information about advances in treatment options or ways of managing side effects.
People living with HIV have unique and important needs that should not be overlooked. Support groups provide a valuable resource for those managing the physical, mental, and emotional toll of an HIV diagnosis.
December 14, 2022 /by Julia Schwab