Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature
Bryan A. Sisk, Megan Keenan, Melody S. Goodman, Argentina E. Servin, Lauren H. Yaeger, Jennifer W. Mack, James M. DuBois
Global Public Health
Objective: We aimed to evaluate the racial and ethnic diversity of study participants in recent pediatric cancer communication literature. Methods: We systematically searched for communication studies in pediatric oncology published between January 2018 and September 2020, limiting analysis to US studies. We considered race and ethnicity as separate categories in our analysis. Two authors screened studies and abstracted characteristics of race and ethnicity reporting and enrollment. Results: Of 98 articles included in this analysis, many studies failed to report participants' race (21/98) and ethnicity (40/98). Most studies ascertained race and ethnicity by self-report (51/98); 25 studies did not describe how they ascertained race and ethnicity. White participants were overrepresented in studies relative to the US population (median 80% in studies vs 72% in 2020 US census). Racial and ethnic minorities were underrepresented (Black: 7% vs 14%; Asian: 4% vs 7%; Pacific Islander: 0% vs 0.5%; Native American: 0.5% vs 3%; Hispanic 8% vs 19%). Conclusion: Communication literature in pediatric oncology underrepresents all racial and ethnic minority populations and is inconsistent in the reporting of race and ethnicity. Practice implications: Future work should follow best practices to ensure this literature adequately represents the experiences of all families in pediatric oncology.
Patient Education and Counseling
https://doi.org/10.1016/j.pec.2021.12.016
Neoplasms/therapy
10.1016/j.pec.2021.12.016
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Communication Medicine & Life Sciences 100%
North American Indians Medicine & Life Sciences 27%
Censuses Medicine & Life Sciences 24%
Practice Guidelines Medicine & Life Sciences 20%
European Continental Ancestry Group Medicine & Life Sciences 20%
Self Report Medicine & Life Sciences 19%
Sisk, B. A., Keenan, M., Goodman, M. S., Servin, A. E., Yaeger, L. H., Mack, J. W., & DuBois, J. M. (2022). Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature. Patient Education and Counseling, 105(7), 2067-2073. https://doi.org/10.1016/j.pec.2021.12.016
Racial and ethnic disparities in communication study enrollment for young people with cancer : A descriptive analysis of the literature. / Sisk, Bryan A.; Keenan, Megan; Goodman, Melody S. et al.
In: Patient Education and Counseling, Vol. 105, No. 7, 07.2022, p. 2067-2073.
Sisk, BA, Keenan, M, Goodman, MS, Servin, AE, Yaeger, LH, Mack, JW & DuBois, JM 2022, 'Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature', Patient Education and Counseling, vol. 105, no. 7, pp. 2067-2073. https://doi.org/10.1016/j.pec.2021.12.016
Sisk BA, Keenan M, Goodman MS, Servin AE, Yaeger LH, Mack JW et al. Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature. Patient Education and Counseling. 2022 Jul;105(7):2067-2073. doi: 10.1016/j.pec.2021.12.016
Sisk, Bryan A. ; Keenan, Megan ; Goodman, Melody S. et al. / Racial and ethnic disparities in communication study enrollment for young people with cancer : A descriptive analysis of the literature. In: Patient Education and Counseling. 2022 ; Vol. 105, No. 7. pp. 2067-2073.
@article{52de8e33ad8e44adb1355f78cda170c4,
title = "Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature",
abstract = "Objective: We aimed to evaluate the racial and ethnic diversity of study participants in recent pediatric cancer communication literature. Methods: We systematically searched for communication studies in pediatric oncology published between January 2018 and September 2020, limiting analysis to US studies. We considered race and ethnicity as separate categories in our analysis. Two authors screened studies and abstracted characteristics of race and ethnicity reporting and enrollment. Results: Of 98 articles included in this analysis, many studies failed to report participants{\textquoteright} race (21/98) and ethnicity (40/98). Most studies ascertained race and ethnicity by self-report (51/98); 25 studies did not describe how they ascertained race and ethnicity. White participants were overrepresented in studies relative to the US population (median 80% in studies vs 72% in 2020 US census). Racial and ethnic minorities were underrepresented (Black: 7% vs 14%; Asian: 4% vs 7%; Pacific Islander: 0% vs 0.5%; Native American: 0.5% vs 3%; Hispanic 8% vs 19%). Conclusion: Communication literature in pediatric oncology underrepresents all racial and ethnic minority populations and is inconsistent in the reporting of race and ethnicity. Practice implications: Future work should follow best practices to ensure this literature adequately represents the experiences of all families in pediatric oncology.",
keywords = "Adolescent, Communication, Disparity, Minority, Pediatric oncology, Minority Groups, Ethnicity, Neoplasms/therapy, United States, Humans, Child, Hispanic or Latino",
author = "Sisk, {Bryan A.} and Megan Keenan and Goodman, {Melody S.} and Servin, {Argentina E.} and Yaeger, {Lauren H.} and Mack, {Jennifer W.} and DuBois, {James M.}",
note = "Funding Information: This work was supported by National Center for Advancing Translational Sciences ( UL1TR002345 ). Publisher Copyright: {\textcopyright} 2021 Elsevier B.V.",
doi = "10.1016/j.pec.2021.12.016",
journal = "Patient Education and Counseling",
publisher = "Elsevier Ireland Ltd",
T1 - Racial and ethnic disparities in communication study enrollment for young people with cancer
T2 - A descriptive analysis of the literature
AU - Sisk, Bryan A.
AU - Keenan, Megan
AU - Goodman, Melody S.
AU - Servin, Argentina E.
AU - Yaeger, Lauren H.
AU - Mack, Jennifer W.
AU - DuBois, James M.
N1 - Funding Information: This work was supported by National Center for Advancing Translational Sciences ( UL1TR002345 ). Publisher Copyright: © 2021 Elsevier B.V.
N2 - Objective: We aimed to evaluate the racial and ethnic diversity of study participants in recent pediatric cancer communication literature. Methods: We systematically searched for communication studies in pediatric oncology published between January 2018 and September 2020, limiting analysis to US studies. We considered race and ethnicity as separate categories in our analysis. Two authors screened studies and abstracted characteristics of race and ethnicity reporting and enrollment. Results: Of 98 articles included in this analysis, many studies failed to report participants' race (21/98) and ethnicity (40/98). Most studies ascertained race and ethnicity by self-report (51/98); 25 studies did not describe how they ascertained race and ethnicity. White participants were overrepresented in studies relative to the US population (median 80% in studies vs 72% in 2020 US census). Racial and ethnic minorities were underrepresented (Black: 7% vs 14%; Asian: 4% vs 7%; Pacific Islander: 0% vs 0.5%; Native American: 0.5% vs 3%; Hispanic 8% vs 19%). Conclusion: Communication literature in pediatric oncology underrepresents all racial and ethnic minority populations and is inconsistent in the reporting of race and ethnicity. Practice implications: Future work should follow best practices to ensure this literature adequately represents the experiences of all families in pediatric oncology.
AB - Objective: We aimed to evaluate the racial and ethnic diversity of study participants in recent pediatric cancer communication literature. Methods: We systematically searched for communication studies in pediatric oncology published between January 2018 and September 2020, limiting analysis to US studies. We considered race and ethnicity as separate categories in our analysis. Two authors screened studies and abstracted characteristics of race and ethnicity reporting and enrollment. Results: Of 98 articles included in this analysis, many studies failed to report participants' race (21/98) and ethnicity (40/98). Most studies ascertained race and ethnicity by self-report (51/98); 25 studies did not describe how they ascertained race and ethnicity. White participants were overrepresented in studies relative to the US population (median 80% in studies vs 72% in 2020 US census). Racial and ethnic minorities were underrepresented (Black: 7% vs 14%; Asian: 4% vs 7%; Pacific Islander: 0% vs 0.5%; Native American: 0.5% vs 3%; Hispanic 8% vs 19%). Conclusion: Communication literature in pediatric oncology underrepresents all racial and ethnic minority populations and is inconsistent in the reporting of race and ethnicity. Practice implications: Future work should follow best practices to ensure this literature adequately represents the experiences of all families in pediatric oncology.
KW - Communication
KW - Disparity
KW - Minority
KW - Pediatric oncology
KW - Minority Groups
KW - Ethnicity
KW - Neoplasms/therapy
KW - United States
KW - Child
KW - Hispanic or Latino
U2 - 10.1016/j.pec.2021.12.016
DO - 10.1016/j.pec.2021.12.016
JO - Patient Education and Counseling
JF - Patient Education and Counseling