Category: Parent to Parent
Gerald's Story: A Tribute to Fathers of Medically Fragile Children
Gerald became a father through adoption over twenty years ago and has devoted his life to his four children ever since. His son Daquan and daughter, Ivy, both live with cerebral palsy and significant support needs. But no matter how much love and en…
Seeing Through His Eyes: The Beauty of Medically Fragile Motherhood
For Maria, motherhood hasn't always been easy. But it is always beautiful. Her older son, Darian, was born premature and lives with cerebral palsy. Maria had to go home from the hospital without Darian soon after he was born. She then watched for…
Rémi's Occupational Therapy Journey: With Us Every Step of the Way
By Alecia, Rémi's Mom Rémi was born a twin on January 23rd, 2017 weighing 5 pounds, 15 ounces. She was diagnosed in utero at 23 weeks with Hypoplastic Left Heart Syndrome (HLHS). She underwent her first open heart surgery at just ten days old…
Javier's Occupational Therapy Journey: Building a Bridge to My Son
By Denny, Javier's Mom In April of 2017, our son, Javier, was diagnosed with Autism and required substantial support. Unsure and confused about what exactly this meant, I felt a big piece of my heart go numb. As parents, we try to study and learn…
Life with Trisomy 21: Catalena's Story
By Priscilla, Cat's Mom When people tell you that you don't know love until you're a parent, it's true. When Catalena first looked up at me with her little baby eyes, it was like time stopped. The world was still. I knew she was going to make my …
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