The CARE principles for indigenous data governance
Stephanie Russo Carroll, Ibrahim Garba, Oscar L. Figueroa-Rodríguez, Jarita Holbrook, Raymond Lovett, Simeon Materechera, Mark Parsons, Kay Raseroka, Desi Rodriguez-Lonebear, Robyn Rowe, Rodrigo Sara, Jennifer D. Walker, Jane Anderson, Maui Hudson
Community, Environment and Policy
Concerns about secondary use of data and limited opportunities for benefit-sharing have focused attention on the tension that Indigenous communities feel between (1) protecting Indigenous rights and interests in Indigenous data (including traditional knowledges) and (2) supporting open data, machine learning, broad data sharing, and big data initiatives. The International Indigenous Data Sovereignty Interest Group (within the Research Data Alliance) is a network of nation-state based Indigenous data sovereignty networks and individuals that developed the 'CARE Principles for Indigenous Data Governance' (Collective Benefit, Authority to Control, Responsibility, and Ethics) in consultation with Indigenous Peoples, scholars, non-profit organizations, and governments. The CARE Principles are people- and purpose-oriented, reflecting the crucial role of data in advancing innovation, governance, and self-determination among Indigenous Peoples. The Principles complement the existing data-centric approach represented in the 'FAIR Guiding Principles for scientific data management and stewardship' (Findable, Accessible, Interoperable, Reusable). The CARE Principles build upon earlier work by the Te Mana Raraunga Maori Data Sovereignty Network, US Indigenous Data Sovereignty Network, Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective, and numerous Indigenous Peoples, nations, and communities. The goal is that stewards and other users of Indigenous data will 'Be FAIR and CARE.' In this first formal publication of the CARE Principles, we articulate their rationale, describe their relation to the FAIR Principles, and present examples of their application.
Data Science Journal
https://doi.org/10.5334/DSJ-2020-043
Data principles
FAIR principles
10.5334/DSJ-2020-043
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Nonprofit organization Engineering & Materials Science 100%
Ethical aspects Engineering & Materials Science 88%
Open Data Engineering & Materials Science 83%
Data Sharing Engineering & Materials Science 77%
Information management Engineering & Materials Science 63%
Big data Engineering & Materials Science 61%
Machine learning Engineering & Materials Science 49%
Carroll, S. R., Garba, I., Figueroa-Rodríguez, O. L., Holbrook, J., Lovett, R., Materechera, S., Parsons, M., Raseroka, K., Rodriguez-Lonebear, D., Rowe, R., Sara, R., Walker, J. D., Anderson, J., & Hudson, M. (2020). The CARE principles for indigenous data governance. Data Science Journal, 19(1), 1-12. [43]. https://doi.org/10.5334/DSJ-2020-043
The CARE principles for indigenous data governance. / Carroll, Stephanie Russo; Garba, Ibrahim; Figueroa-Rodríguez, Oscar L. et al.
In: Data Science Journal, Vol. 19, No. 1, 43, 2020, p. 1-12.
Carroll, SR, Garba, I, Figueroa-Rodríguez, OL, Holbrook, J, Lovett, R, Materechera, S, Parsons, M, Raseroka, K, Rodriguez-Lonebear, D, Rowe, R, Sara, R, Walker, JD, Anderson, J & Hudson, M 2020, 'The CARE principles for indigenous data governance', Data Science Journal, vol. 19, no. 1, 43, pp. 1-12. https://doi.org/10.5334/DSJ-2020-043
Carroll SR, Garba I, Figueroa-Rodríguez OL, Holbrook J, Lovett R, Materechera S et al. The CARE principles for indigenous data governance. Data Science Journal. 2020;19(1):1-12. 43. doi: 10.5334/DSJ-2020-043
Carroll, Stephanie Russo ; Garba, Ibrahim ; Figueroa-Rodríguez, Oscar L. et al. / The CARE principles for indigenous data governance. In: Data Science Journal. 2020 ; Vol. 19, No. 1. pp. 1-12.
@article{cd8c960345f2487384d5c17e7edae606,
title = "The CARE principles for indigenous data governance",
abstract = "Concerns about secondary use of data and limited opportunities for benefit-sharing have focused attention on the tension that Indigenous communities feel between (1) protecting Indigenous rights and interests in Indigenous data (including traditional knowledges) and (2) supporting open data, machine learning, broad data sharing, and big data initiatives. The International Indigenous Data Sovereignty Interest Group (within the Research Data Alliance) is a network of nation-state based Indigenous data sovereignty networks and individuals that developed the {\textquoteleft}CARE Principles for Indigenous Data Governance{\textquoteright} (Collective Benefit, Authority to Control, Responsibility, and Ethics) in consultation with Indigenous Peoples, scholars, non-profit organizations, and governments. The CARE Principles are people- and purpose-oriented, reflecting the crucial role of data in advancing innovation, governance, and self-determination among Indigenous Peoples. The Principles complement the existing data-centric approach represented in the {\textquoteleft}FAIR Guiding Principles for scientific data management and stewardship{\textquoteright} (Findable, Accessible, Interoperable, Reusable). The CARE Principles build upon earlier work by the Te Mana Raraunga Maori Data Sovereignty Network, US Indigenous Data Sovereignty Network, Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective, and numerous Indigenous Peoples, nations, and communities. The goal is that stewards and other users of Indigenous data will {\textquoteleft}Be FAIR and CARE.' In this first formal publication of the CARE Principles, we articulate their rationale, describe their relation to the FAIR Principles, and present examples of their application.",
keywords = "Data governance, Data principles, Data sovereignty, FAIR principles, Indigenous",
author = "Carroll, {Stephanie Russo} and Ibrahim Garba and Figueroa-Rodr{\'i}guez, {Oscar L.} and Jarita Holbrook and Raymond Lovett and Simeon Materechera and Mark Parsons and Kay Raseroka and Desi Rodriguez-Lonebear and Robyn Rowe and Rodrigo Sara and Walker, {Jennifer D.} and Jane Anderson and Maui Hudson",
note = "Funding Information: S.R.C. was the primary author of the manuscript, and coordinated and participated extensively in the drafting and editing of the CARE Principles. S.R.C., I.G., and D.R.L received partial support from the Morris K. Udall and Stewart L. Udall Foundation. As senior author, M.H. was significantly involved in the drafting of the CARE Principles and this manuscript text. I.G. was significantly involved in the drafting of the manuscript. J.A. contributed a case that illustrates the emerging implementation of the CARE Principles. All other authors are listed alphabetically, and contributed to the manuscript by their participation in the initial workshop and/or by editing or commenting on the manuscript text. Funding Information: The original workshop "Indigenous Data Sovereignty Principles for the Governance of Indigenous Data," was organized by Stephanie Russo Carroll and Maui Hudson, in collaboration with the Research Data Alliance (RDA) International Indigenous Data Sovereignty Interest Group at the International Data Week held Thursday, 8 November 2018, in Gaborone, Botswana. The Principles described in this manuscript represent voluntary contributions and participation of the authors at, and/or subsequent to, this workshop and from the wider US Indigenous Data Sovereignty Network, Te Mana Raraunga Māori Data Sovereignty Network, and Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective communities. We acknowledge the Indigenous Peoples of Botswana, on whose land the Principles emerged, as well as Indigenous Peoples worldwide. We are grateful to the RDA for the workshop location and to the RDA US for travel support for some attendees. This paper was supported by the RDA Europe 4.0 project that has received funding from the European Union{\textquoteright}s Horizon 2020 research and innovation programme under grant agreement No 777388. Thank you to the following individuals for their comments, edits, and suggestions: Randy Akee, Leah Ballantyne, Donna Cormack, Dominique David-Chavez, Bhiamie Eckford-Williamson, Nanibaa{\textquoteright} Garrison, Sharon Hausam, Lydia Jennings, Tahu Kukutai, Kelsey Leonard, Christina Ore, Qunmigu (Kacey Hopson), Andrew Sporle, Michele Suina, Maggie Walter, the Alaska Native Policy Center at the First Alaskans Institute, and the attendees at the "The International Law, United Nations Declaration of the Rights of Indigenous Peoples and Indigenous Data Sovereignty" Workshop at the O{\~n}ati International Institute of the Sociology of Law. We also acknowledge Andrew Martinez{\textquoteright}s contributions to designing the tables and figures. Funding Information: The original workshop ?Indigenous Data Sovereignty Principles for the Governance of Indigenous Data,? was organized by Stephanie Russo Carroll and Maui Hudson, in collaboration with the Research Data Alliance (RDA) International Indigenous Data Sovereignty Interest Group at the International Data Week held Thursday, 8 November 2018, in Gaborone, Botswana. The Principles described in this manuscript represent voluntary contributions and participation of the authors at, and/or subsequent to, this workshop and from the wider US Indigenous Data Sovereignty Network, Te Mana Raraunga Maori Data Sovereignty Network, and Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective communities. We acknowledge the Indigenous Peoples of Botswana, on whose land the Principles emerged, as well as Indigenous Peoples worldwide. We are grateful to the RDA for the workshop location and to the RDA US for travel support for some attendees. This paper was supported by the RDA Europe 4.0 project that has received funding from the European Union?s Horizon 2020 research and innovation programme under grant agreement No 777388. Thank you to the following individuals for their comments, edits, and suggestions: Randy Akee, Leah Ballantyne, Donna Cormack, Dominique David-Chavez, Bhiamie Eckford-Williamson, Nanibaa? Garrison, Sharon Hausam, Lydia Jennings, Tahu Kukutai, Kelsey Leonard, Christina Ore, Qunmigu (Kacey Hopson), Andrew Sporle, Michele Suina, Maggie Walter, the Alaska Native Policy Center at the First Alaskans Institute, and the attendees at the ?The International Law, United Nations Declaration of the Rights of Indigenous Peoples and Indigenous Data Sovereignty? Workshop at the O?ati International Institute of the Sociology of Law. We also acknowledge Andrew Martinez?s contributions to designing the tables and figures. Publisher Copyright: {\textcopyright} 2020 The Author(s).",
doi = "10.5334/DSJ-2020-043",
journal = "Data Science Journal",
publisher = "Committee on Data for Science and Technology",
T1 - The CARE principles for indigenous data governance
AU - Carroll, Stephanie Russo
AU - Garba, Ibrahim
AU - Figueroa-Rodríguez, Oscar L.
AU - Holbrook, Jarita
AU - Lovett, Raymond
AU - Materechera, Simeon
AU - Parsons, Mark
AU - Raseroka, Kay
AU - Rodriguez-Lonebear, Desi
AU - Rowe, Robyn
AU - Sara, Rodrigo
AU - Walker, Jennifer D.
AU - Anderson, Jane
AU - Hudson, Maui
N1 - Funding Information: S.R.C. was the primary author of the manuscript, and coordinated and participated extensively in the drafting and editing of the CARE Principles. S.R.C., I.G., and D.R.L received partial support from the Morris K. Udall and Stewart L. Udall Foundation. As senior author, M.H. was significantly involved in the drafting of the CARE Principles and this manuscript text. I.G. was significantly involved in the drafting of the manuscript. J.A. contributed a case that illustrates the emerging implementation of the CARE Principles. All other authors are listed alphabetically, and contributed to the manuscript by their participation in the initial workshop and/or by editing or commenting on the manuscript text. Funding Information: The original workshop "Indigenous Data Sovereignty Principles for the Governance of Indigenous Data," was organized by Stephanie Russo Carroll and Maui Hudson, in collaboration with the Research Data Alliance (RDA) International Indigenous Data Sovereignty Interest Group at the International Data Week held Thursday, 8 November 2018, in Gaborone, Botswana. The Principles described in this manuscript represent voluntary contributions and participation of the authors at, and/or subsequent to, this workshop and from the wider US Indigenous Data Sovereignty Network, Te Mana Raraunga Māori Data Sovereignty Network, and Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective communities. We acknowledge the Indigenous Peoples of Botswana, on whose land the Principles emerged, as well as Indigenous Peoples worldwide. We are grateful to the RDA for the workshop location and to the RDA US for travel support for some attendees. This paper was supported by the RDA Europe 4.0 project that has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 777388. Thank you to the following individuals for their comments, edits, and suggestions: Randy Akee, Leah Ballantyne, Donna Cormack, Dominique David-Chavez, Bhiamie Eckford-Williamson, Nanibaa' Garrison, Sharon Hausam, Lydia Jennings, Tahu Kukutai, Kelsey Leonard, Christina Ore, Qunmigu (Kacey Hopson), Andrew Sporle, Michele Suina, Maggie Walter, the Alaska Native Policy Center at the First Alaskans Institute, and the attendees at the "The International Law, United Nations Declaration of the Rights of Indigenous Peoples and Indigenous Data Sovereignty" Workshop at the Oñati International Institute of the Sociology of Law. We also acknowledge Andrew Martinez's contributions to designing the tables and figures. Funding Information: The original workshop ?Indigenous Data Sovereignty Principles for the Governance of Indigenous Data,? was organized by Stephanie Russo Carroll and Maui Hudson, in collaboration with the Research Data Alliance (RDA) International Indigenous Data Sovereignty Interest Group at the International Data Week held Thursday, 8 November 2018, in Gaborone, Botswana. The Principles described in this manuscript represent voluntary contributions and participation of the authors at, and/or subsequent to, this workshop and from the wider US Indigenous Data Sovereignty Network, Te Mana Raraunga Maori Data Sovereignty Network, and Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective communities. We acknowledge the Indigenous Peoples of Botswana, on whose land the Principles emerged, as well as Indigenous Peoples worldwide. We are grateful to the RDA for the workshop location and to the RDA US for travel support for some attendees. This paper was supported by the RDA Europe 4.0 project that has received funding from the European Union?s Horizon 2020 research and innovation programme under grant agreement No 777388. Thank you to the following individuals for their comments, edits, and suggestions: Randy Akee, Leah Ballantyne, Donna Cormack, Dominique David-Chavez, Bhiamie Eckford-Williamson, Nanibaa? Garrison, Sharon Hausam, Lydia Jennings, Tahu Kukutai, Kelsey Leonard, Christina Ore, Qunmigu (Kacey Hopson), Andrew Sporle, Michele Suina, Maggie Walter, the Alaska Native Policy Center at the First Alaskans Institute, and the attendees at the ?The International Law, United Nations Declaration of the Rights of Indigenous Peoples and Indigenous Data Sovereignty? Workshop at the O?ati International Institute of the Sociology of Law. We also acknowledge Andrew Martinez?s contributions to designing the tables and figures. Publisher Copyright: © 2020 The Author(s).
N2 - Concerns about secondary use of data and limited opportunities for benefit-sharing have focused attention on the tension that Indigenous communities feel between (1) protecting Indigenous rights and interests in Indigenous data (including traditional knowledges) and (2) supporting open data, machine learning, broad data sharing, and big data initiatives. The International Indigenous Data Sovereignty Interest Group (within the Research Data Alliance) is a network of nation-state based Indigenous data sovereignty networks and individuals that developed the 'CARE Principles for Indigenous Data Governance' (Collective Benefit, Authority to Control, Responsibility, and Ethics) in consultation with Indigenous Peoples, scholars, non-profit organizations, and governments. The CARE Principles are people- and purpose-oriented, reflecting the crucial role of data in advancing innovation, governance, and self-determination among Indigenous Peoples. The Principles complement the existing data-centric approach represented in the 'FAIR Guiding Principles for scientific data management and stewardship' (Findable, Accessible, Interoperable, Reusable). The CARE Principles build upon earlier work by the Te Mana Raraunga Maori Data Sovereignty Network, US Indigenous Data Sovereignty Network, Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective, and numerous Indigenous Peoples, nations, and communities. The goal is that stewards and other users of Indigenous data will 'Be FAIR and CARE.' In this first formal publication of the CARE Principles, we articulate their rationale, describe their relation to the FAIR Principles, and present examples of their application.
AB - Concerns about secondary use of data and limited opportunities for benefit-sharing have focused attention on the tension that Indigenous communities feel between (1) protecting Indigenous rights and interests in Indigenous data (including traditional knowledges) and (2) supporting open data, machine learning, broad data sharing, and big data initiatives. The International Indigenous Data Sovereignty Interest Group (within the Research Data Alliance) is a network of nation-state based Indigenous data sovereignty networks and individuals that developed the 'CARE Principles for Indigenous Data Governance' (Collective Benefit, Authority to Control, Responsibility, and Ethics) in consultation with Indigenous Peoples, scholars, non-profit organizations, and governments. The CARE Principles are people- and purpose-oriented, reflecting the crucial role of data in advancing innovation, governance, and self-determination among Indigenous Peoples. The Principles complement the existing data-centric approach represented in the 'FAIR Guiding Principles for scientific data management and stewardship' (Findable, Accessible, Interoperable, Reusable). The CARE Principles build upon earlier work by the Te Mana Raraunga Maori Data Sovereignty Network, US Indigenous Data Sovereignty Network, Maiam nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective, and numerous Indigenous Peoples, nations, and communities. The goal is that stewards and other users of Indigenous data will 'Be FAIR and CARE.' In this first formal publication of the CARE Principles, we articulate their rationale, describe their relation to the FAIR Principles, and present examples of their application.
KW - Data governance
KW - Data principles
KW - Data sovereignty
KW - FAIR principles
U2 - 10.5334/DSJ-2020-043
DO - 10.5334/DSJ-2020-043
JO - Data Science Journal
JF - Data Science Journal