Duchenne Muscular Dystrophy affects many boys worldwide. This disease rips your heart out.This is about a mothers / fathers heartbreak for dreams unfulfilled, for the anguish we all feel, for lives cut too short…our boys are our heros, they sufffer in silence and this disease does not get the recognition it deserves.I hope this message will touch your hearts and educate you a little more. People often see our boys in their chairs, but do not realise the struggle life has been for them, they often don't realise that they had a life before the wheelchair. For more information go to the Parent Project Australia (PPA)website: www.parentproject.org.au Support us, support our boys, help make a difference. Parent Project Australia has been "re-branded". Look for the new DUCHENNE FOUNDATION. The new website – www.duchennefoundation.org.au will be up soon…..in the meantime that link will default to the Parent Project Australia website.
please keep your son's nutrition up! nutrition is the key. i promise.
My son has recently been diagnosed with DMD he is 7yrs old. I have been processing this for 6months and have found it hard to absorb. A mothers tears helped me find mine and I often catch myself thinking your last words – when I am alone I cry, this I know will be true for me for the rest of my life. I am grateful for a glimps at your story, I am on the journey of my own now…. May the small things reward you and your family with love!
Thank you for this touching and sensitive video. It shows the "new normal" in a family when a child is diagnosed with DMD. I had the gift of being able to visit with a boy with DMD for 3 years…it changed my life. I always feel that he was the reason I chose to go to graduate school, and study children who have illnesses.
beautiful job, DMD has been a part of my life for many years… I have watched a friend and later a boyfriend pass away… too many have lost this battle. I have been part of the fight now for over 40 years, I will never stop. I feel this pain too. I wish you less tears, and more smiles in your day to day life.
I just lost a friend to Duchenne's last night. I was surfing around, looking for a good way to get my tears out – and I found this. Absolutely beautiful song – I have cerebral palsy and am fundraising in the US for the Muscular Dystrophy Association (MDA). My " kid" (he has parents, it's an endearing term) is turning 9 soon, and he has DMD. This video and song deepens my passion, even though I work 24/7/365 for MDA here in America. God bless you and your son. What an inspiration and a hero.
My brother has this. I know all of your pain. I've seen it first hand. We were blessed in the fact that he is midly austic. I hope your son has a great quality of life. I wish you the best.
I feel so sorry for you and your family, I hope they find a cure real soon. Good luck in all you do.
Beautiful song and video clip…..yes our boys are our sunshine….
How many tears!!!! I know how it´s like.