Does anyone have CDH/DDH? I am 36 and have bilateral CDH which was diagnosed late (at 3 yrs) and I've had a series of operations over the years to try to correct this. I've recently discovered this site and am amazed that many of the symptoms described relate to me. Some of the things I have noticed are
I have mild scoliosis
I have had a micro discectomy for a prolapsed disc in my lower spine(12 yrs ago)
I have very flexible thumbs and loose knees (+ increasing knee pain)
My scars from surgery on my hips are wide and look thin to me. Take a long time to fade anyway.
My ribs are very high and stick out uneavenly
My pain in mainly in my hips and knees.
Pain definately increases around the time of my period and with cold weather
I had very quick labours with both my children.
I feint when I am given local anaethetic (not sure if this is at all related or not - could just be me feeling woosy!!)
I have recently had a steriod injection in my hip for bursitis, but I'm not convinced this is what the problem was as I still have pain the same as before and ultrasound scan didn't show any inflamed bursa.
My Xrays on my hips show them to be okay (ie not arthritic), but I do have odd shaped end of my femurs. I am still have pain in my hips which gets worse through the day and pain killers (diclofenac) don't seem to help. After a good rest, I am better though, until I start walking and doing everyday things (hoovering/ironing etc etc)
I'm a bit confused and not really sure where to go from here. This syndrome has never been mentioned to me by any health professional I have come into contact with (& I've seen a few!) but it all seems to fit.
Anyone with any similar experiences, please let me know. I would love to hear from you.