The views expressed by me are for educational purposes only and do not establish a doctor patient relationship.
Thanks for your question.
Porphyrea Cytanea Tarda (PCT) is one possible cause besides hemochromatosis.
The underlying defect is an enzyme deficiency in the liver.
Another hereditary condition called ferroportin mutation can cause iron overload.
Please rate the chat Good or Excellent, if you are satisfied with our conversation and do not have any further question, so that I get rewarded for my time & effort. Thank you!
Please bookmark my profile for asking further questions!This is the link to my profile: http://www.justanswer.com/medical/expert-mysticdoc/
How will her dr. test for these other possibilities?
Plasma porphyrin levels can be checked to diagnose PCT
Checking for genetic mutations for ferroportin
Also transferrin receptor 2 mutation.
Will she suffer terrible damage to her organs because the levels are so high?
unlikely since she is getting phlebotomies
A liver biopsy can be considered since this is major organ that may get affected .