Objectives: The COVID-19 pandemic has seen cystic fibrosis (CF) working practice move to more remote clinical models. This study assesses theimpact of this shift in working patterns on the relationships betweenfamilies of young people with CF and CF multidisciplinary teams (MDT). Inaddition, the study also assessed parents’ perceptions of working remotely.Methods: Six semi-structured interviews with parents of young peopleunder the care of a regional UK CF specialist centre were analysed usinginductive content analysis.Results: Three domains emerged: Interpersonal Relationships, RemoteClinics and CF in the Context of COVID-19. The enduring and closerelationships between the MDT and families were discussed, includingchanges brought about by COVID-19 and changes in working practice.Discussion also focused on the acceptability of remote clinics movingforwards.Conclusions: The importance of the quality of the relationship betweenfamilies and CF MDTs is vital to enhance ongoing care with parentshighlighting key attributes in a successful working relationship. Remoteworking was acceptable in the context of COVID-19 and, with someconsiderations, could be useful moving forward
The impact of COVID-19 on the relationships between parents of young people diagnosed with cystic fibrosis and the cystic fibrosis multidisciplinary team