Narod SA. Tamoxifen ChemopreventionâEnd of the Road?. JAMA Oncol. 2015;1(8):1033â1034. doi:10.1001/jamaoncol.2015.2247. Download citation file:
About Rare Diseases. A rare disease is defined by the European Union as one that affects less than 5 in 10,000 of the general population. There are between 6,000 and 8,000 known rare diseases. Around five new rare diseases are described in medical literature each week.
Office of Rare Diseases (ORD) of the National Institutes of Health (NIH) FOP is listed as a rare disease by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that FOP, or a subtype of FOP, affects less than 200,000 people in the US population. Source - National Institutes of Health (NIH)