To describe the natural history of a condition or disease. To describe the natural history of a condition or disease. To determine effectiveness or cost effectiveness of treatments/services and/or health care products. To measure or monitor safety and harm. To measure quality of care.
According to the NMSS, attacks or flare-ups of symptoms only qualify as exacerbations if: 1  they occur at least 30 days from an earlier flare-up. 2  symptoms last for 24 hours or longer.
There is no cure. However, symptoms can be managed. Porphyria flare-ups usually last a week or two, with symptoms decreasing as the attack draws to a close. The more care someone takes in managing their condition, the fewer flares they will likely experience. Patients with this disease are highly sensitive to sunlight.