Due to the disorders rare occurrence there is no standardized treatment or protocol. There were no clinical trials conducted on patients that suffer from<unk> , therefore, we are unaware of the safety or potential treatment for such a condition. At this moment we can find a series of single case reports of patients. Physicians treat specific syndromes of the disorder in order to improve the lives of patients. Treatment usually involves a collaboration of many medical professionals. These medical professionals include, but are not limited to: dermatologists, doctors who have specialized in diagnosing and treating skin disorder; ophthalmologists, specialists of the eyes; cardiologist, doctors of the heart; endocrinologists, specialists of the endocrine system; neurologists and or neurosurgeons, specialist in treating and diagnosing conditions of the brain; otolaryngologists, specialists of the ear, nose, and throat; dentists, who are specialized in treating conditions of the teeth, speech pathologists; psychiatrists, and many others. Management<unk>  needs to be managed by a multidisciplinary team of experts. Additional specialties such as cardiology, ophthalmology, neurology, and neurosurgery may need to be involved. The team of experts pay close attention to how these children develop throughout the school age period.<unk>  Handbook - Dr. Beth Drolet In 2013, the<unk>  Community was formed. The non-profit entity was developed to raise awareness about the condition, support patients and families of those with the condition and raise money for research into causes and treatment.
PHACE syndrome
Char syndrome
MASS syndrome
Flammer syndrome
TAN syndrome
Dressler syndrome
HAIR-AN syndrome
Wunderlich syndrome