Co-founder Ronald J. Bartek in 2017 The<unk>  (FARA) is a 501(c)(3), non-profit, tax-exempt organization formed to support the<unk>  on<unk> 's<unk> . It was formed in 1998 by Ron and Raychel Bartek. FARA's turnover in 2017 was $7.3 million with over 98% spent on programs. It has had a Four Star rating from Charity Navigator since 2011.<unk>  is also advanced by its partnership with the Muscular Dystrophy Association FARA organizes various cycling fundraising events One of the biggest events is the RideAtaxia which is a sponsored bicycle ride in various locations akin to Race for the Cure The organization maintains a large patient registry.
Friedreich's Ataxia Research Alliance
Coeliac UK
Parkinson's UK
Muscular Dystrophy UK
Emery–Dreifuss muscular dystrophy
LMNA-related congenital muscular dystrophy
Niemann–Pick disease, SMPD1-associated
Ullrich congenital muscular dystrophy