실제 질병관리본부에 따르면 희귀질환자 16.4%가 4개 넘는 병원을 거치고 나서야 최종 진단을 받으며 확진까지 평균 7.6년이 걸리는 것으로 조사됐다.
In fact, according to the Korea Centers for Disease Control and Prevention, it was found that 16.4% of patients with rare diseases go through more than 4 hospitals before receiving the final diagnosis, and it took an average of 7.6 years to be confirmed.