caption: Rare Disease By The Numbers
exif: {"Image DocumentName": "Rare Disease By The Numbers", "Image ImageDescription": "7000 Rare Diseases. 80% of Rare Diseases are genetic. 50% of people affected by rare disease are children. 30% of children with rare disease will not see their 5th birthday. 200,000 or less affected by a rare disorder. 30 million affected Americans and 350 million worldwide. If all people with rare disease lived in one country, it would be the world\u2019s 3rd most populous country. ~400 approved therapeutic treatments. 7+ physician visits before receiving an accurate diagnosis. 4.8 years mean length of time from symptom to accuate diagnosis. 95% of all rare diseases have no FDA approved drugs. Rare diseases are responsible for 35% of mortality in the first year of life. The FDA approved 326 new drugs for rare disease during the first 25 years of the Orphan Drug Act. At this rate it will take more than 500 years to develop drugs for the remaining 6,674 rare diseases. We\u2019ve got to move faster. Source: Rare Diseases: Facts and Statistics, globalgenes.org, CDC website, Rare Disease study by Engage Health, CDC. In conclusion, your summary is important. What is your elevator speech Capture the essence of the preceding 14 slides and include your coordinates with a call to action. Let\u2019s briefly cover the formation of your elevator speech so that you can weave it in here. XX.", "Image XResolution": "300", "Image YResolution": "300", "Image ResolutionUnit": "Pixels/Inch", "Image Software": "SlidePlayer", "Image YCbCrPositioning": "Centered"}