Join the Lymphoedema Support Network
Joining the LSN could not be easier. Joining will not only give you access to all our information and support but your £15.00 annual membership fee will also allow us to continue our vital work.
Fundraising for LSN
What do the Lymphoedema Support Network need to raise funds for?
Learn more about our intrepid half marathon runners and more in the August edition of our new online newsletter.
The National Lymphoedema Partnership team
The NLP is a collaboration of groups from across the UK and Ireland working in the field of lymphoedema, including the LSN. The NLP has recently published 'Commissioning Guidance for Lymphoedema Services for Adults in the United Kingdom'…
The LSN's new book is now available
People living with lymphoedema need to be empowered with the information they need to help manage their swelling on a daily basis. The aim of the book is to leave you with a better understanding of lymphoedema and what you can do to help yourself.
The LSN has shared over 30 years of information and experience, including members' quotes, hints & tips, and personal thoughts. The book is largely based on the LSN's accumulated library of patient information, which has all been written specifically for the LSN by dozens and dozens of fully qualified lymphoedema practitioners, and other healthcare professionals. As with all our information, it has been reviewed and updated to reflect current thinking.
It covers a wide range of topics, from the key elements of lymphoedema care, right through to a chapter explaining what people need to know about surgical options. There are chapters on breast and torso lymphoedema as well as head, face and neck, and genital swelling. Lymphoedema in pregnancy, young children and teenagers has also been included. There is even a chapter about Self Lymphatic Drainage (SLD), which includes four demonstration sections, one each for arms, legs, breast and chest, and face, head and neck, together with photos showing people exactly how to carry it out. As far as the LSN is aware, this is the first time this type of information has been published in a book such as this!
Order your copy now!
Please know you are not alone, at least 400,000 men, women and children in the UK live with lymphoedema/chronic oedema. Whether you are newly diagnosed, are concerned that you may be at risk, live with or care for someone with the condition, or are a Health Care Professional interested in lymphoedema, the LSN is here for you.
With appropriate information and the help and support of a lymphoedema practitioner, there is much that patients can do to help themselves in the management and control of their condition. Indeed, patient education, advice and support is now at the forefront of care, ensuring all patients diagnosed with lymphoedema, become an expert in managing their own condition.
Think you might be at risk?
Information for Health Care Professionals
'The Lymphoedema Support Network is a registered charity and the UK's national patient support organisation for those living with or affected by lymphoedema.'
The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting people with this condition by providing a high standard of information that can be trusted and promoting supported self-management. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. Having a unique understanding of the patient experience of lymphoedema allows us to work to raise awareness, campaign at a national and local level for equal access to care, provide patient input to research studies and commission and sponsor GP and other health care professional online education.
For over 30 years the LSN has been there to provide information and support to those living with or affected by lymphoedema/chronic oedema and although we are now an award-winning charity we are proud still to be run by people with lymphoedema, for people with lymphoedema and we firmly believe that lymphoedema matters.
Need to speak to us?
We are available Monday to Friday – 09.30 to 16.30. Call our friendly team on 020 7351 4480
The LSN receives no statutory or health service funding and is reliant on the generosity of our supporters to be able to continue our work.
Call 020 7351 0990 to donate or Contact Us to get involved
Hold An Event
Why not hold a sponsored walk, cake sale, barn dance, you could even jump out of a plane if you are so inclined! And don't forget to send us a picture so we can build up our photo wall.
You can support our work by making a regular donation to the LSN via JustGiving or by setting up a standing order. Call our team for further information.
Raise funds while shopping online!
Easyfundraising – provides a FREE service where you can shop with your favourite online stores, and at no extra cost, raise funds for the LSN.
"The fact that I can call on the LSN at anytime is a huge help. They are supportive and pro-active on my behalf and I am happy to help in any way I can."
LSN Member 2016
"I have learnt more about my condition and how to manage it in the three months since I joined the LSN than in all the years before…thank you."
Mrs J, Cambridge
"The telephone support line was invaluable to me when I was first diagnosed and scared – a lifeline."
Ms D, Ilford